How has living with neurofibromatosis affected your daily life?
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We have created a new dedicated group to neurofibromatosis. For the first discussion here in the "Living with neurofibromatosis," please introduce yourself and talk about how neurofibromatosis has affected your daily life.
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Hi everyone my name is Ricky. I am now almost 40 years old. Yea for me!
NF has affected my life in various ways, more so when I was younger. as I was slightly delayed in education... I had a tumor removed from my SC, which caused me a lot of pain and made my heart work a lot harder than it used to. I have basically a permanent scoliosis, so this affects my endurance and ability to take part in certain activities/things I do and also I have high blood pressure and have that under control.
I have daily pain from the scoliosis, some days better than other.
I am looking forward to meeting others with NF as I do not know many.
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