Waiting for a diagnosis - what can I expect? How do I prepare?


Patients Multiple sclerosis

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Topic of the discussion

Posted on

Hello all.

I am a new member here and thank you got opening this site to me!

From my understanding, I have all the symptoms of MS: paresthesia in fingers, severe fatigue, headaches, visual disturbances, strange sensations in my legs and arm, itching... you name the MS symptom, I probably have it. 

I need to have an Electromyogram (I think I spelled it correctly), but I am almost certain it is MS. The paresthesias has been there for over 4 months and for the other symptoms it has been for months to years!

I have to have a minor orthopedic surgery in about month on my elbow. I am afraid of this operation. 

Again... I am fairly certain I have MS.

As a result of all of this, I have been very depressed and moody and thinking about it and the future only worsens the feelings of depression, anxiety, and worrying.

I am alone. No spouse, no children. I do not want to talk to my immediate family about it either, like parents and siblings.

Exchanging with people who have MS and are living with it can and will definitely help me feel less alone. I hope to talk to you all soon through here.

Feel free to comment and let me know what I could expect in the future, how to deal, etc. Thank you!

Beginning of the discussion - 12/28/18

Waiting for a diagnosis - what can I expect? How do I prepare?

Posted on

I am sorry to hear of what you are experiencing. I hope you do not have MS, but if you do, I hope you can find a diagnosis from a good a doctor who cares for you! Getting a diagnosis and finding a doctor that cares can be someo of the more not-thought-of challenges! What is the elbow surgery for? When is your EMG? Any updates?

Waiting for a diagnosis - what can I expect? How do I prepare?

• Community manager
Posted on

@looking4 how are you doing? Have you received a diagnosis?

Hope you do not feel alone anymore. Know that you have a community here you can always reach out to, as well as, if possible, I would encourage you to seek out a support group in a community near you.

Hope to hear from you soon.

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