Stopping MS treatment

@lester198 Hi lester198, thank you for opening this discussion.  Let me tag some other members who may be able to share their experiences with this:

Hello everyone, how are you doing? 
Have you ever put your MS treatments on hold? What did you experience? Did you have any side effects or a relapse of your MS?
@brina2818‍ @Pelaton‍ @inkygirl‍ @madysonbenline‍ @Kpoll1‍ @Setrina‍ @Kwag98‍ @Babster‍ @Mandy1‍ @Eryadon82bu‍ @fayecrg‍ @Tayk_98‍ @EROC2113‍ @maryanna‍ @lea6571‍ @Gingerstovall‍ @Elibegun‍ 

Feel free to share your experiences and advice here!

Take care,
Courtney

@lester198 I don't personally have experience with this but I imagine the severity of any side effects or reactions you'd have would depend on the medications you're stopping. I've heard that stopping disease-modifying drugs can be hard on the body. But if you're doing it following your doctor's advice and under his/her supervision I'd think you'd be ok. Maybe someone else who's been through this can tell you more.

I did not intentionally put my treatments on hold but Covid forced me to be 3 months late with my Occrevus infusion and, yes, symptoms did come back and I did have a relapse.  I finally had the infusion back in May and still dealing with some residual effects!!

I am 68 years old and stopped my medicine when I was 61.  Everything had been going well in the past, a few flare-ups that might last about 2 days,  I was on Beta Seron since it first came out.  I met a lady with MS on a cruise and she told me that the medicine does not help much past 60.  So I stopped taking it.  I still take medication for the tiredness and also medication for vertigo (which has been my main problem).  So far, it has been over 6years and I seem to be doing the same as when I was 61.  I keep my fingers crossed every day that things don't get worse.