Questions about trigrminal neuralgia

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maryam20

06/09/2018 at 11:26 PM

Hi,

I have T.N

treating with 600 mg Carbamazepine daily.

my pain is controlled with this dose, but I can’ Live a life with this dose. I mean I can’ move, or I can very difficultly move, all the day I sleep and totally my life is distroyed by Carbamazepine, do you know other options for my T.N pain please?

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Lee__R

Community manager

06/20/2018 at 8:09 AM

Hello @maryam20‍, we do have a group dedicated to TN; however, there are currently not many members of that group as Carenity.us is still growing. Have you spoken to your doctor about any alterantive medicines? Have you attempted accupuncture?

Questions about trigrminal neuralgia https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/questions-about-trigrminal-neuralgia-206 2018-06-20 08:09:36

Nikhead

06/22/2018 at 4:11 PM

I too have a form of TN. My pain is inside my head behind the eyes. I’m on a dosage of 900 mg oxycarbezapine, daily. Hate to break the bubble but nothing yet is working for me. I’ve tried acupuncture & still my attacks come daily despite the medication.

latest thing we’re trying is botox. The verdict is still out.

Questions about trigrminal neuralgia https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/questions-about-trigrminal-neuralgia-206 2018-06-22 16:11:33

LynndMS

07/14/2018 at 4:55 PM

I have it also. I’m on gabapentin 900mg (I have neuropathy too in hands and feet) and it doesn’t control my TN pain.

What area of the US are you located?

Questions about trigrminal neuralgia https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/questions-about-trigrminal-neuralgia-206 2018-07-14 16:55:02