Patients Multiple sclerosis
Topic of the discussion
Posted on 6/9/18 11:26 PM
I have T.N
treating with 600 mg Carbamazepine daily.
my pain is controlled with this dose, but I can’ Live a life with this dose. I mean I can’ move, or I can very difficultly move, all the day I sleep and totally my life is distroyed by Carbamazepine, do you know other options for my T.N pain please?
Beginning of the discussion - 6/20/18Questions about trigrminal neuralgia https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/questions-about-trigrminal-neuralgia-206
Posted on 6/20/18 8:09 AM
Hello @maryam20, we do have a group dedicated to TN; however, there are currently not many members of that group as Carenity.us is still growing. Have you spoken to your doctor about any alterantive medicines? Have you attempted accupuncture?
Posted on 6/22/18 4:11 PM
I too have a form of TN. My pain is inside my head behind the eyes. I’m on a dosage of 900 mg oxycarbezapine, daily. Hate to break the bubble but nothing yet is working for me. I’ve tried acupuncture & still my attacks come daily despite the medication.
latest thing we’re trying is botox. The verdict is still out.
Posted on 7/14/18 4:55 PM
I have it also. I’m on gabapentin 900mg (I have neuropathy too in hands and feet) and it doesn’t control my TN pain.
What area of the US are you located?