Patients Multiple sclerosis
I'm convinced I have MS
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I was diagnosed with COPD 6 years ago I'm 39 now. Lately I have been extremely fatigue,dizzy and depressed. My lung specialist ran many tests including sleep studies and found nothing wrong. He says next move is see psych doctor and I been down that road before. All my health issues started in my 20s. Here's my history.I can go back to my early 20s my depression and mood flipped, I always had problems with bugs crawling on me or my legs itching. 1 time it got so bad I thought it was just my legs really dry. My wife at time had a nurse friend that suggested dandruff shampoo. Nothing helped. It just went away on its own. I developed erectile dysfunction in my 20s. During this time I was treated as bipolar. The medications made my symptoms worse with depression. I ended up going to family doctor at that time and got her to prescribe ADHD medicine. Which brought my mood and fatigue up during that time. I still did get depression on and off during this time. I had to get my eyes checked for a Dot physical they stated I had damage on my optic nerve that I would probably lose sight in my 1 eye in 10 years. There was a period of time that my wrist would hurt for no reason I thought was from an old injury but it eventually went away and has been years since it has been a problem. I do get foot and leg cramps. My foot cramps are like my toes are trying to separate from each other. My big toe would go up and my little toes down. I do get restless leg syndrome but usually random times when I'm on melatonin. I have urination problems that I go frequent with weak stream. More recently the past couple years I have what I've counted 4 occurances of blurred vision in both eyes that appears as I'm looking through a gold fish bowl with water in it. My legs still fall asleep like there's static in my legs but usually goes away within a few minutes. I still feel like I have bugs crawl on my body multiple times in a day, I'm dizzy and always suffered from fatigue since around my 20s. There's times I do have problems saying words that are easily said but I feel like I'm tongue tied and discounted as that because my dad was tongue tied in his youth he had surgery to fix.
Since my 20s my life has been hell so many ups and downs. I'm not bipolar I know this!! they say my manic episodes are the times I felt normal and not normal. I'm not going down that route again. On stimulants gets me to my normal. Not other way around. I'm convinced I have MS and doctor has not got back to me yet going into the weekend. I guess I'm asking does my story sound like someones path to being dignosed.
I will say never let a doctor pin something on a mental illness. You got something wrong you follow it to the extent. I was labeled bipolar from a screwed up time in my life and ever since it's impossible medically to get anything done.
@Obiron Hello Obiron and welcome to the community. I'm sorry to hear you've been through all that, it can be frustrating when you don't feel listened to by doctors or that you've been misdiagnosed. Let me tag some other members who can maybe share their perspective with you.
Hello members, how are you doing today? What do you think? Do Obiron's symptoms sounds like MS to you? Did you have a hard time getting doctors to listen to you before you were diagnosed? Or were you even misdiagnosed? Do you have any advice to share?
@Tancherio96 @rita123456 @Cmclaughlin @Maryjohnsonmn @butch1940 @Brinahbaby92 @Stacie0311 @dimples854 @makaylah76904 @SherryT @sma5153 @NancyT @Rayne86 @Jayn1122 @cindy.wms1962 @msjoye
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Courtney_J, Community Manager, Carenity US
I appreciate it I'm going to continue to add health issues I've had and maybe someone can relate. My doctor did do referral to neurologist on October 3 he did want results from narcolepsy sleep study first.
I did 1 last update, more organized too. Just really frustrated because I still work and I can't fully function. These doctors are taking forever. At what point is dizziness a serious issue.
My family doctor did a physical exam with my eyes and setup mri because of Nystagmus. No comments just views. This was a wasted community but I got my diagnoses.
@Obiron Hi Obiron, ah I'm sorry I missed this, I haven't been on here in a bit! So you don't have MS? That's good news! I think a lot of people may not feel comfortable giving you advice on this because MS can be very hard to diagnose as it is and should be left to doctors. Wish you the best!
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