Patients Multiple sclerosis
Topic of the discussion
Posted on 8/27/20 9:48 PM
Last update full medical history*
Age 15-18 overactive lymph nodes
Swollen appendix removed
Slipped in shower hitting my head and cut my jaw
Reading comprehension problem and leaving letters off the end of words. Example 'They' I would forget the Y , "your" I will forget R
Very hyper,energetic and active
When in Cold too long I break out in hives
Broken wrist in 2 places forced by weight back in place
Foot cramps developed where big toe goes up and little toes down
20-29 Erectile dysfunction,urination problems weak stream and frequent at night, hand shakes, depression, fatigue, mood changes was dignosed bipolar age 22
itching problems started and tried taking bath in dandruff shampoo never went away, bugs on skin feeling,
eye test shown slanted/damaged optic nerve. Light sensitive in the lazy eye. Developed allergy to hair dye after dying hair for years. Reaction was swelling from neck up, eye swollen shut and infection on scalp.
Wrist pain for a few years off and on maybe due to childhood injury. Carpal tunnel testing was done no findings.
Flesh eating bacteria on ear received antibiotics
Leg cramps while sleeping, severe pain would pull leg upto my chest.
Blacked out causing car accident age 29-30
30 to current
Stopped all bipolar meds except 100mg Seroquel and was put on 70mg Vyvanse from age 30 to 31. Was closest to normal during this time free from fatigue and mild depression. After age 31 no medications insurance issues with Vyvanse. Age 35 came down with fever, week later pnemonia. While at hospital dignosed COPD.
Still have issues with itching(ghost itch), bugs crawling on skin feeling, fatigue, my eyes show floaters and eyes go cross eye quick then back to normal very fast.(twice a week occurances) Sunlight causes headaches behind lazy eye. I close or squint that eye only. Curved hat to that side helps also. My legs and feet feel like they fall asleep"static" feeling on a daily and hurt.
Spasms in butt and leg, legs jerk at times also
I get restless legs while laying down but is amplified and more often while taking melatonin, Seroquel or trazadone on daily basis.
Last 2 years 4 occurances of double vision lasts 5-10 min (looking through fishbowl of water)
Age 38 lost balance stubbed my toe, severe pain for 2 months x-rays showed no issues
Recently I went to Family doctor with dizziness, gasping for air in middle of night and fatigue. He noticed high pulse BP's resting between 90-100 BPs. Did EKG that showed issues with the start beat occasionally missing. Referred lung specialist and heart specialist. Lung specialist ran multiple blood tests,sleep study, changed inhalers and schedule another sleep study on oct 28th. The heart specialist ran another EKG found same issues as family doctor. Put heart on heart monitor over night showing same results.scheduled ultrasound but found nothing ,conflicting prior results with 2 EKG and heart monitor. It has been over 2 months I still have dizziness amplified by heat, waking up gasping for air and fatigue. I also currently have a tender spot in my calf going on a year now.
Since my 20s my life has been hell so many ups and downs. I have so many issues in my past that went unanswered. I'm not bipolar I know this!! they say my manic episodes are the times I felt normal and not normal. I'm not going down that route again. On stimulants gets me to my normal. Not other way around. I'm convinced I have MS and doctor has not got back to me yet going into the weekend. I guess I'm asking does my story sound like someones path to being dignosed.
Beginning of the discussion - 8/28/20I'm convinced I have MS https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/im-convinced-i-have-ms-2425
Posted on 8/28/20 6:02 AM
I will say never let a doctor pin something on a mental illness. You got something wrong you follow it to the extent. I was labeled bipolar from a screwed up time in my life and ever since it's impossible medically to get anything done.
Posted on 8/28/20 5:48 PM
@Obiron Hello Obiron and welcome to the community. I'm sorry to hear you've been through all that, it can be frustrating when you don't feel listened to by doctors or that you've been misdiagnosed. Let me tag some other members who can maybe share their perspective with you.
Hello members, how are you doing today? What do you think? Do Obiron's symptoms sounds like MS to you? Did you have a hard time getting doctors to listen to you before you were diagnosed? Or were you even misdiagnosed? Do you have any advice to share?
@Tancherio96 @rita123456 @Cmclaughlin @Maryjohnsonmn @butch1940 @Brinahbaby92 @Stacie0311 @dimples854 @makaylah76904 @SherryT @sma5153 @NancyT @Rayne86 @Jayn1122 @cindy.wms1962 @msjoye
Posted on 8/28/20 11:07 PM
I appreciate it I'm going to continue to add health issues I've had and maybe someone can relate. My doctor did do referral to neurologist on October 3 he did want results from narcolepsy sleep study first.
Posted on 8/31/20 8:26 PM
I did 1 last update, more organized too. Just really frustrated because I still work and I can't fully function. These doctors are taking forever. At what point is dizziness a serious issue.
Posted on 9/1/20 1:31 AM
Posted on 9/1/20 11:55 PM
My family doctor did a physical exam with my eyes and setup mri because of Nystagmus. No comments just views. This was a wasted community but I got my diagnoses.
Posted on 9/2/20 3:24 PM
@Obiron Hi Obiron, ah I'm sorry I missed this, I haven't been on here in a bit! So you don't have MS? That's good news! I think a lot of people may not feel comfortable giving you advice on this because MS can be very hard to diagnose as it is and should be left to doctors. Wish you the best!