Patients Multiple sclerosis
Topic of the discussion
Posted on 9/13/18 8:20 PM
So, I made a comment about this on the "how does ms affect you" thread, but I wanted to know more since I have yet to hear back from anyone. Do any of you experience hair loss with MS? I have been for sometime now and it's depressing to shower or even brush my hair with all the clumps of hair continuously falling out. :( I read this can be a thing with Lupus which makes me wonder if maybe I was misdiagnosed again or if it's MS related. I have been having a lot of flares and even sleepy at odd hours of the day, but back to the hair loss.. anyone else deal with this too?
Beginning of the discussion - 9/14/18Hair loss with Ms? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/hair-loss-with-ms-454
Posted on 9/14/18 3:56 AM
I am sorry to hear about your hair loss.
Have you spoken to your doctor about this? I know that some MS medications are the same as those of some cancer patients, and some of those medications can cause hair loss. Also certain steroid meds can have possible hair loss side-effects.
Also, did you ever have blood work done? some times things with the thyroid can cause hair loss?
Let's see what other members of MS also say.
Posted on 9/14/18 9:23 AM
Thanks for the reply, and yes I have had my thyroid checked multiple times which has come back fine. As for speaking to my doctor, not yet because it's depressing and the regular pcp may say it is normal with age ir something not sure. I go see my neurologist soon next month or so and I will mention it to him. It would make sense if it was the meds for ms, but the problem with that is I have not been on any MS med for a few years or more. Lastly, steriods. The only one I have had done multiple tines is Solumedrol through an IV to help correct my vision when my left eye blurs or goes close to blind. It does not last long, these steriod treatments, so lately I stay away from those too.
Posted on 9/14/18 7:55 PM
Hi @Emma2190 I am sorry to hear about your hair loss with MS. I have heard of others losing hair with MS, but I am not certain why.
I do not have any hair loss that I attribute to MS... I do always lose some hair, but not in great amounts enough for me to be concerned and I have attributed it to my stress overall, but who knows.
I think if it is to the point that you are concerned about it you should address it with your PCP or other doctors that you see. You say it may be attributed to age, or that is what you fear, but I saw your other post and it said you were only 27, right?
That is still very young. I am not a doctor, but seems young for hair loss. Do you have hair loss in your family?
Posted on 9/15/18 1:50 AM
@suplkr1 Thank you for the reply and it's helpful to know you have heard of others with MS having hair loss. It's good to know I am not the only one. As for having hair loss in my family, no I do not and especially not at 27 years of age, which is not something I fear, it's more everyone telling me it is my age when I know it's not. I will talk to my neuro when I see him because it depresses me daily if I shower, brush my hair or even put it up/run my fingers through it etc.
Posted on 9/18/18 5:36 AM
@Emma2190 when do you meet with your neuro? please keep me updated.
Posted on 9/18/18 2:27 PM
In November and I will
Posted on 9/20/18 4:49 AM
Wishing you the best. It will be here before you know it.
BTW have you ever tried a fortifying shampoo and conditioner to see if that works? Also make sure the shampoo and conditioner you are using is paraben and sulfate free because research shows they can attribute hair loss also.
Posted on 9/28/18 3:30 PM
@suplkr1 I haven't tried that but I will thanks and the appointment has been moved to October. The second or third week in. I did however see my PCP recently and she told me it was likely due to stress, which I have a lot of.
Posted on 10/3/18 4:25 AM
Let me know how it works for you!