Patients Multiple sclerosis
Topic of the discussion
Posted on 4/25/20 5:24 PM
i had bad one yesterday and i spoke to irani nures and wont know anymore till monday. please keep me in your prayers.
Beginning of the discussion - 4/27/20How do you deal with MS flare ups? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/flare-up-1827
Posted on 4/27/20 7:43 PM
@mrscarone Hello mrscarone, thank you for starting this discussion. I'm so sorry you're going through that. Please keep us updated on how you're doing if you feel up to it. We'll be keeping you in our thoughts!
Hello members, I hope you don't mind me tagging you. What do you do to cope with flare-ups? Do you have any advice or words of encouragement for mrscarone?
@Lisaddavis @KristieAnne @Pennyf @Ecjnhay @KimberlyCollins @Jenpags @michelle31110602 @Eppersonr @Cathyoli @amymblar1974 @Brensanti5 @gdreadi @Tattoomom @Lisaamillie @Iodine @2THEMOORES
Posted on 4/27/20 7:46 PM
I don’t know how to deal with that flareups hurt so bad I don’t have any family support I have nothing to advise you with my friends don’t even understand did you tell me I’m being re-re-
Posted on 4/30/20 3:18 PM
Flare-ups are the worst... It is really hard to cope physically and mentally. I'm so sorry to read that you're in pain @mrscarone Personally, I'm trying to prevent them by avoiding stress. Everyday, I'm doing some exercices of yoga or just meditation if I'm not feeling so good. And I try to be as rested as I can be.
Obviously, support from your loved ones is important but family and friends don't always understand... And you can find this support elsewhere @KimberlyCollins don't hesitate to share your feeling, your joy or your pain here. There are some really good listeners on Carenity.
Posted on 5/27/20 2:03 PM
Flare ups are dreadful. My daughter lives with me and even she doesn't get it. I am refusing iv steroids right now so I ask her to leave me to myself for the most part. When I need help she's there to help me. The thing that helps me the most is prayer. It cuts my depression time in half with a flare up. Keeping your spirits up keeps the stress level down. Reducing stress especially during a flare reduces the length of the flare.
Posted on 5/28/20 5:02 PM
@KimberlyCollins What really helps me besides preventive measures (anti-stress things like stretching, etc.), are the steroids my doctor prescribes. It stops the inflammation and helps everything calm down.
Posted on 11/19/20 6:31 PM
How are you doing? Have you seen our latest article about MS? In it we explain MS relapses: How to manage an MS relapse?
How do you handle your MS flare-ups or relapses? What types of symptoms do you experience? Do you know what triggers them?
@Lenny651 @Amommy306 @Charlene1952 @lrestoff @NarimanSerry @10sister02 @jbarrus @mylovinghusband @Mustang08 @Chigirl @NourElatky @Spring @ajsilverman @kimkim51p0 @cathybuffalo @Oneal61
Feel free to share your thoughts, experiences, and any advice you may have here!
Posted on 11/19/20 6:54 PM
My flare ups are maninly numbness in the right leg, left hand, and my head, What triggers them are mostly being anxious or upset. Sometimes crying as well starts a relapse. The worst part is headaches. They are almost daily and severe. I just rest and have a deep sleep with a pain killer.. That’s it.
Posted on 11/19/20 9:36 PM
I was diagnosed about a year ago and it took the prior year to figure out what was causing my symptoms. My neurologist and I have been working to get my symptoms under control. I have went from a oral medication to fusion. I have only been on the infusion for a few weeks and it seems to be helping.
I have had many symptoms such as numbness, weak extremities, trigeminal neuralgia, nerve pain, extreme fatigue, vision issues and hearing loss. I have been sleeping a lot and really haven't found anything that works. I try to walk as much as I can in the neighborhood.