Patients Multiple sclerosis
Topic of the discussion
Posted on 2/22/20 2:45 AM
I have lived with MS for over 25 yrs, but recently I have started to experience times where my body seems to "forget" how to do things. An example, I was at the doctor and was told to take a deep breath. I knew exactly what the doctor wanted me to do, but I couldn't get my body to do it. I have had it happen more than once where I was holding something and went to put it down, and my hand didn't respond to put it down. There have been other things, but you get the idea. AM I crazy? Has this happened to anyone else? Is this normal for MS?
Beginning of the discussion - 2/24/20Does this happen to you? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/does-this-happen-to-you-1571
Posted on 2/24/20 3:51 AM
I have so much pain in my neck, back legs, ankle. I at night, I want to cry. The pain is awful no one understands. The thoughts go thur my mind is crazy sometimes, feel alone why.
Posted on 2/24/20 9:16 PM
I'm so sorry that you are going through this. The pain can be unbearable at times. If I didn't find my strength in my relationship with Jesus, I would never make it through. The other thing that has helped me was to get with a really good doctor who has worked on my diet and added supplements to control the inflammation in my body. I am currently only on two medications, besides my supplements. I still deal with pain and muscle spasms on a daily basis, but no where to the degree I used to. I no longer eat dairy, sugar or grains, and I avoid all night shades. I has been a game changer. I will be praying that you will find relief with your pain, and that you will find connections so you don't feel so alone.
Posted on 2/25/20 5:57 PM
@soravec I've had incidents like this before, but very fast like a few seconds delay between my mind telling my body what to do and my body actually doing it. It's an extremely strange sensation. Could it just be a delay between brain and muscle because of the damage done by MS?
Posted on 2/25/20 9:48 PM
That's what I am thinking it probably is. Sometimes it is longer than others and I think those are the times that are more bothersome. It helps knowing that it happens to others