https://www.carenity.us/static/themes-v3/default/images/us/header/multiple-sclerosis.jpg

Patients Multiple sclerosis

4 replies

41 views

Topic of the discussion



Posted on

I have lived with MS for over 25 yrs, but recently I have started to experience times where my body seems to "forget" how to do things.  An example, I was at the doctor and was told to take a deep breath.  I knew exactly what the doctor wanted me to do, but I couldn't get my body to do it.  I have had it happen more than once where I was holding something and went to put it down, and my hand didn't respond to put it down.  There have been other things, but you get the idea.   AM I crazy?  Has this happened to anyone else? Is this normal for MS?

Beginning of the discussion - 2/24/20

Does this happen to you?


Posted on

I have so much pain in my neck, back legs, ankle. I at night, I want to cry. The pain is awful no one understands. The thoughts go thur my mind is crazy sometimes,  feel alone why.

Does this happen to you?


Posted on

I'm so sorry that you are going through this. The pain can be unbearable at times. If I didn't find my strength in my relationship with Jesus, I would never make it through.  The other thing that has helped me was to get with a really good doctor who has worked on my diet and added supplements to control the inflammation in my body. I am currently only on two medications, besides my supplements.  I still deal with pain and muscle spasms on a daily basis, but no where to the degree I used to.  I no longer eat dairy, sugar or grains, and I avoid all night shades.  I has been a game changer.  I will be praying that you will find relief with your pain, and that you will find connections so you don't feel so alone.

Does this happen to you?


Posted on

@soravec I've had incidents like this before, but very fast like a few seconds delay between my mind telling my body what to do and my body actually doing it. It's an extremely strange sensation. Could it just be a delay between brain and muscle because of the damage done by MS?

Does this happen to you?


Posted on

That's what I am thinking it probably is. Sometimes it is longer than others and I think those are the times that are more bothersome. It helps knowing that it happens to others 

Most commented discussions