Pediatric MS and Acute disseminated encephalomyelitis (ADEM)

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britthaeg921

04/23/2021 at 3:18 AM

britthaeg921

Last activity on 01/17/2022 at 2:30 PM

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Was anyone diagnosed with childhood ADEM and within two years diagnosed with childhood ms?

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Courtney_J

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04/26/2021 at 10:56 PM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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Hello @britthaeg921‍, thank you for opening this discussion. Let me tag some other members who can possibly share with you.

Hi everyone, how are you doing?

If you haven't already heard of it, acute disseminated encephalomyelitis (ADEM) is a rare type of inflammation around the brain and spinal cord that damages the myelin sheath. Its cause is not quite understood, but it often occurs often an infection and some of its symptoms are similar to those found in MS.

Are you familiar with ADEM? Have you or anyone close to you experienced it? Do you know if there's a link between it an pediatric MS?
@Charmaine59‍ @Jennifermckinney‍ @Tcampagna‍ @Miamio123‍ @sammi.ray‍ @Jans‍ @emmemm12‍ @djbehret‍ @Letschat‍ @Jwelden‍ @Rebeccaglenn‍ @HashnMemms‍ @Sherriblack‍ @Corrie‍ @Kbassett‍ @P.Martin‍ @doberman‍

Feel free to share any thoughts or experiences here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Pediatric MS and Acute disseminated encephalomyelitis (ADEM) https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/childhood-adem-3291 2021-04-26 22:56:28

britthaeg921

04/26/2021 at 11:33 PM

britthaeg921

Last activity on 01/17/2022 at 2:30 PM

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Thank you Courtney for throwing this info out there.

Pediatric MS and Acute disseminated encephalomyelitis (ADEM) https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/childhood-adem-3291 2021-04-26 23:33:23

lester198

05/06/2021 at 4:28 PM

lester198

Last activity on 03/15/2023 at 6:28 PM

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@Courtney_J @britthaeg921 Oh wow I've never heard of this, but I can see how it could be related with the myelin sheath and inflammation. Are you or someone in your family going through this? I'm not even sure I was aware that pediatric MS was a thing. I'm so sorry, if so!

MS is hard enough as an adult, I can't even imagine what it's like for a kid.

Pediatric MS and Acute disseminated encephalomyelitis (ADEM) https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/childhood-adem-3291 2021-05-06 16:28:59

britthaeg921

05/06/2021 at 6:34 PM

britthaeg921

Last activity on 01/17/2022 at 2:30 PM

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It is me.

Pediatric MS and Acute disseminated encephalomyelitis (ADEM) https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/childhood-adem-3291 2021-05-06 18:34:38

britthaeg921

05/09/2021 at 5:20 PM

britthaeg921

Last activity on 01/17/2022 at 2:30 PM

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Just two days ago I found out I was MOG positive. This is a new disease that was discovered two years ago. This disease resembles MS.

Pediatric MS and Acute disseminated encephalomyelitis (ADEM) https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/childhood-adem-3291 2021-05-09 17:20:57

Pediatric MS and Acute disseminated encephalomyelitis (ADEM)

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