Patients Multiple sclerosis
Topic of the discussion
Posted on 1/6/21 11:13 PM
I've had no tests or no diagnosis, but have been having strange symptoms. My skin, pretty much all over my whole body, feels tingly, burnt, and chilled, like I've been dipped in peppermint. It does come and go, somewhat, but there's always something.
it's been over 2 weeks. This is my only symptom and I am very active. I am 71 years old.
Beginning of the discussion - 1/15/21Burning and tingling all over my body - Is this MS? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/burning-and-tingling-all-over-my-body-2923
Posted on 1/15/21 5:21 PM
@pahm0816 Hello pahm0816, thank you for opening this discussion. I'm sorry to hear you're having those symptoms with no diagnosis! I hope you'll continue to push with your doctor to investigate what's going on, but in the meantime let me tag some other members here in our MS community to weigh in.
Hi everyone, how are you doing today?
Have you all ever experienced a widespread tingling or burning sensation all over your body? Does this sound like a symptom related to MS? Can you share any insights or advice?
@LizzieS @Panda2334 @Steph_14 @txwendy @KVera718 @Aliciaburatti @virtualee @NatA11 @richjh @Fufu08 @Myusername2021 @CookieMonster @ashtodkenz3 @MelodyHoven @bawannajim @RachelRay @Healthy2b
Feel free to share here!
Posted on 1/16/21 12:39 AM
The first thing I noticed was numbness in my fingers and palms of both hands that never completely went away. The numbness would subside and then get bad again for almost 3 months until I was diagnosed.
Posted on 1/17/21 6:23 PM
I have periodic tingling in both hands. It seems to fade away within 10 minutes.
Posted on 1/17/21 7:28 PM
I have constant tingling in my hands and feet and I itch all the time it's like it's coming from the inside
Posted on 1/18/21 5:18 PM
I’m going to try infusions to help relieve the numbness in my hands. Has anyone had infusions done?
Posted on 1/18/21 11:31 PM
I've been on Ocrevus infusions
Posted on 1/19/21 1:58 AM
Did your infusions help at all?
Posted on 1/20/21 5:21 AM
Yes, I was able to start my infusions 3 months after being diagnosed, and after my symptoms started, so I feel very fortunate
Posted on 1/26/21 2:05 AM
I saw another post that you asked about sugar levels (My assumption is that like me you have diabetes and MS). When talking to my doctor and my neurologist and something new comes up they point fingers at the other each others problem. From now on I blame all of my issues on one of the following 3 things: (1) diabetes (Neropathy), (2) MS or my favorite (3) SOFT Some Other "F"ing thing. No One has any answers and I just go with the flow.