Topic of the discussion
Posted on 5/9/19 12:16 AM
My PC sent me to a Rheumatologist after I had a high ANA (positive) titer patter, homogenous, 1:640.
When I googled symptoms a lot of them made sense (hair loss, GI issues, frequent infections, swelling of legs and feet, etc.).
Today the Rheumatologist told me I do not have lupus because the antibodies that indicate lupus were within normal range, minus ANA and a low RBC. I asked why my titer was high and I didn’t receive a real answer.
Has anyone else received results similar to this only to find out they actually do have lupus?
Beginning of the discussion - 5/18/19High ANA titer and other symptoms, but Rheumatologist said I don't have lupus - anyone with similar experience/results? https://www.carenity.us/forum/lupus/living-with-lupus/high-ana-titer-and-other-symptoms-but-rheumatologist-said-i-dont-have-lupus-anyone-with-similar-experienceresults-958
Posted on 5/18/19 1:59 AM
I have severely low WBC and RBC alongside all the symptoms on and off again but flares happening every month. Negative ANA though and a multitude of other tests. My rheumatologist basically said there’s nothing more for him to do and followed with I can get a second opinion.
so out of pocket here we go .
you should seek another opinion until you find the doctor that is right for you and will listen.