Topic of the discussion
Posted on 8/25/18 4:21 AM
I was diagnosed with lupus (SLE) about 20 years ago and am 37. My husband and I have been trying to conceive for the past 3.5 years. We got pregnant a little over a year ago but had a missed miscarriage at about 7 weeks. Since the first pregnancy took so long, rather than trying again naturally we underwent fertility treatment and were good candidates for IUI, which was successful on our second round. However, earlier this week we, again, lost the pregnancy through missed miscarriage at about 10 weeks
I know lupus carries a higher risk of miscarriage, combined with my “advanced maternal age” - but I’d love to hear from the ladies with lupus out there. Did you have a miscarriage, if so, more than one? Did you eventually find success? If so, was it natural or with some form of treatment? What issues did you experience?
We are going to keep trying - I’m nowhere done with this fight yet. But I’m hoping to hear some stories about light at the other end of the tunnel.
Beginning of the discussion - 8/27/18Lupus and Pregnancy/Miscarriage https://www.carenity.us/forum/lupus/living-with-lupus/lupus-and-pregnancymiscarriage-391
Posted on 8/27/18 8:34 PM
Hi Lauren. I will give you some insight from a couple of women I have met over the years with LUPUS and who were going through with pregnancy or had children. I myself cannot give a perspective personally because I have not become pregnant since being diagnosed with LUPUS nor can I say I have actually tried.
I have known one lady who was diagnosed with lupus (systemic) and gave birth twice. She was told to stop taking her lupus medication while trying to get pregnany - that was for her first. However, that made her flare up very bad, so she got back on the medication. From my understanding, it is the flares that can result in miscarriages or affect a successful pregnancy.
I have another friend who had, I believe, two miscarriages before finally giving birth. She was around 34 when she gave birth. She too said she was told by her doctor that flare ups are the major reason of affecting a successful birth. He wanted her to continue with medication (not sure actual medication or dosage), and to take proactive measures to prevent flare-ups.
I know they each sought out a doctor who helped with pregnancies who also worked with their specialist.
I hope this helps some. Feel free to ask me questions and I will do my best to reach out to my friends or answer them if I know. Wish you all the best.
Posted on 6/2/20 6:14 PM
Hi everyone, I know this is an old discussion, but my partner and I are thinking about starting a family together since we feel ready and I'd be interested to hear other peoples' experiences. Has anything changed or progressed since this was posted? We're really at the "just thinking about it stages" and I'm worried that my lupus will make it impossible for us.
I'd love any insights from you all
Posted on 6/2/20 6:29 PM
@jasmine1092 Hello jasmine1092, thank you for reviving this discussion!
Hello everyone, how are you doing today? How was your experience getting and being pregnant? Did you experience any complications due to your lupus? Or on the contrary, did it not have any impact at all on your pregnancy? Feel free to share your story here, we're all here to help one another!
Posted on 6/11/20 6:09 AM
Hi everyone, I got pregnant last yr but lost d pregnancy at 19 wks, tho it wasn't confirmed to be lupus flare or something. D baby strangulated himself with umbilical chord. It's over a yr now that have been trying but nothing yet. But I keep hoping and believing that it will happen again.
Posted on 7/3/20 6:03 PM
@Follytee I'm sorry to hear about your miscarriage. Don't worry, don't stress, it will happen for you, I know it.
@jasmine1092 I had my first before I was diagnosed and everything went relatively well. With my second I had my diagnosis, and I had asked my doctor before getting pregnant about the risks and things and he advised me to wait until my lupus had been under control or in remission for at least six months before trying. Lupus pregnancies are usually classed "high risk" because of the risk of preeclampsia. I had lots of follow-up and more appointsments than with my first as they wanted to make sure that everything went well, and it did. I hope this helps you!
Wishing you both the best!
Posted on 10/26/20 7:25 PM
I was diagnosed with lupus 6 years ago. All 3 of my pregnancies have been high risk due to the lupus literally at multiple drs every other day the whole pregnancy in n out of hospitals getting nst's but all 3 of my girls are healthy so far thank god had them all natural. With no ivf no nothing after each pregnancy the drs have mentioned getting my tubes tied because of the lupus and the risks. When the time is right the baby will come just dont stress and let it happen🙏❤ sending prayers your way