Lupus
Forum

Current topics:

• - Can lupus cause hair loss? How to cope?
  Hi everyone, I have had some hair loss for a while, which I attribute to lupus. I also have Crohn's, but my doctor said it is due to lupus diagnosis However, I feel like it is progressing rapidly an
• - If you could get rid of one of your lupus symptoms, which one would it be and why?
  Hello everyone, How are you today?  With chronic illness often comes many symptoms that can make daily life difficult. I thought it might be interesting for us to talk about lupus symptoms. If you co
• - Lupus and sun exposure: Can you tolerate the sun?
  Hi, I spent all of last sunday out in my friend's backyard. I didn't think it was that sunny out, but ever since I've been all kinds of pain in a really bad flare-up. It's never happened to me before

Current topics:

• - Alternative treatments besides prescriptions?
  I am interested in knowing what treatments people have tried to cure or control their lupus other than prescription medicines. I am tired of medicines and have been reading about alternative treatmen
• - What treatments have you tried for lupus? What works for you?
  Hi all, Just out of curiousity what medications have you tried for Lupus and what has been your success in terms of the treatment as in regard to side-effects. I have been on Plaquenil; however, I
• - How do you handle your Lupus flare-ups?
   Hi everyone, I was hoping to get some of your opinions/perspectives. I've had lupus for a while now, but these past few months have been exceptionally bad. I'm on plaquenil and a small dose of corti

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - Biotherapy and COVID-19: Has the virus had an impact on your treatment?
  Hello everyone, How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune response (immunosuppressants).Patients who use these treatments
• - Coronavirus and immune system and inflammatory diseases - questions, concerns, tips?
  Hello everyone, Since the Coronavirus epidemic concerns many Americans (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of immu
• - feeling trapped by the ticking time bomb quality of life with my lupus family tree
  As of yet I have yet to be diagnosed with lupus. I clicked the interested button because there was nothing else that fit my situation better. concerned and stressed out would be a better fit. both my

Current topics:

• - Can I restart medication for my rheumatoid arthritis after not seeing my doctor in two years?
  My husband has been very ill for the last two years and I have been his caregiver he recently passed away. I haven’t seen my rheumatologist in that time I just haven’t been able to get away as my
• - Can I take Ivermectin with my autoimmune disease?
  Can I get Ivermecton?
• - Are there any new developments in medications and treatments for fibromyalgia?
  I have all the diseases that I mentioned under "topic."  I get confused as to what is causing which symptom and how to treat my symptoms.  I take Humira for the Crohn's disease, nothing now for fibr

Current topics:

• - What natural herbs or supplements have you tried for painful joints?
  Hello Carenity members, I have had numerous surgeries on my clavicle (in fact, I have the first ever done surgery on my clavicle and I am in some medical books - have basically very minimal of my ori
• - Getting mobile when you cant move
  Any tips on regaining mobility.just getting back on your feet has so many challenges looking for ideas and support on this topic..
• - Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
    Delphine's testimonialYears of diagnostic uncertainty facing Ehlers-Danlos Syndrome    When I was a child, I was already in pain. Back pain, stomach pain. I thought it was the same for everyon