Patients Hodgkin lymphoma
What is your lymphoma diagnosis story? Let's share!
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How are you today?
I thought I would create this discussion so we can all get to know one another better!
So, what is your lymphoma diagnosis story? Do you have Hodgkin's or non-Hodgkin's lymphoma? When and how were you diagnosed? What symptoms were you having that let you know something was wrong? What treatments have you undergone? How are you doing today?
@Hind97 @moshiro @Jacobrock25 @Cposter63 @Nitahiggins @Tuesday112 @Byrd1965 @Jesusag85 @Alice_89 @Michelle413 @Sammygirl @Brenton1992 @Jtinkshell @Char26 @thepatientstory @Gary'sgirl @Christopher
Feel free to share your story with us here!
And if you haven't seen it already, @Driggs09 just recently shared his story with us in a testimonial! You can read it here: Hodgkin's Lymphoma: Staying Active and Positive Through Treatment
@Courtney_J Hi, I was diagnosed with diffuse large B-cell lymphoma (DLBCL) about a year ago. I was having really bad night sweats and some pressure in my chest, and then I noticed a lump in my armpit. I went through about a million tests it felt like and they found it had spread. I went through a few rounds of R-CHOP (a lovely mix of chemo drugs) and today I'm in remission!
I was diagnosed with non-hodgkin's follicular lymphoma in March this year, completely by accident, after a referral for stomach in January.
I don't really have symptoms, so it was a total shock when they told me that they saw enlarged lymph nodes on the CT scan and that I needed an urgent biopsy. The biopsy came back with stage 3A NHFL. I was and still shocked. In the day-to-day I don't really have any symptoms at all other than feeling more tired that usual and night sweats. I'm not in treatment because it's a slow-growing cancer so we're just watching to see how/if it develops.
Early 2020 I noticed a bruise look on my forehead. No pain. I woke up and my tight eye wouldn't open. Had biopsy results positive for non Hodgkin's follicular lymphoma. Did 6 Chemo treatments and followed up with many radiation treatments two times per day for 5 days.. I believe 3 weeks of that. The day they said it was gone I had another one show on my left side of the neck and then another a couple days later on the right side. This time they started with the radiation once a day for many weeks 5 days per week and am now going through another chemo series of 6 treatments. My doctor says it is now aggressive
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