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Living with HIV/AIDS

HIV and stigma

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avatar exit

Unregistered member

11/29/2019 at 11:40 AM

My partner is HIV-positive. He got the disease through unwise decisions in his past, but has since turned his life around and is healthy and happy. We've been together for 2 years. But, recently a family member found out about his status and told my parents and it's caused a real mess. My family is pretty religious and some of my relatives say I should leave him or that being with him is dangerous for my health.

Has anyone else dealt with people trying to shame you because you're with an HIV poz person or if you are poz? I can't understand all the hysteria this has caused. People on treatment don't die anyone (except very rare exceptions) and my partner is undetectable and we protect ourselves.

This whole situation is just so depressing. Any advice? 

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12/02/2019 at 7:52 AM

 I can understand their fear I am pos 28 years and I would be concerned for my daughter. I hope you are in volved with his healthcare and visual see whole blood  work results. 

   Now on the other hand. I as a hiv pos person have a spouse who is negative. We are careful but I am undetectable and viral load of 1298. I also share my blood work with him. He doesnt ask but it's the rite thing to do.

Please be patient with your family and be sure to protect yourself  


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-02 07:52:22

avatar Kaikun

Kaikun

12/06/2019 at 2:48 AM

avatar Kaikun

Kaikun

Last activity on 12/10/2019 at 2:03 AM

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1 comment posted | 1 in the Living with HIV/AIDS group


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Hello everyone! I am just a new member and I live in Daly City, CA. I am looking for a clinic for LGBT people around Daly City. Can someone give me the importation about the clinic? Thank you guys. 


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-06 02:48:55

avatar terrilynn

terrilynn

12/15/2019 at 8:29 AM

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avatar terrilynn

terrilynn

Last activity on 12/24/2019 at 9:48 AM

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9 comments posted | 7 in the Living with HIV/AIDS group

1 of their responses was helpful to members


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@susanbant like someone else said, try to be patient with your family. However, the BEST thing that you can do for them, is to Educate them! and then once they understand that he is going to be okay, and that you will be okay, and that you understand what to do to protect yourself, and that you DO protect yourself, and also, that he loves you too much to risk your life and safety, they will eventually understand. Your family wants you to be happy, more than anything, and they are afraid of the unknown.

the Only people who are afraid of the disease, are the people who dont understand it, and are unknowledgeable. so take the time to teach them. so many people have HIV/AIDS now days, that, almost everyone, has someone, in their lives, who lives w the disease, whether they know it yet, or not. maybe ask to have a family meeting w ur folks, (just you, at first), take them plenty of information, and try to avoid the scare propaganda, that adds to their fears. im happy to help you find real-life info, if you need help. im 32+ years positive, and about 25-27 years full blown, so i have real life info im happy to share. (you can see my profile?). my husband too, is negative, and we have been together for 10 years now, and just to make sure no accidents happen we dont know about, from time to time, i buy test kits, and demand he take them. (idk if 'demand' is a good way to say it, because he is happy to do it, for my own peace of mind, if nothing else). 

try not to worry about the situation w ur folks too much, and cause you stress. thats not good for anyone. maybe it will ease their minds, if you tell them that you will periodically take a test, just to make sure all is well, and ur happy to share your results with them. 

i wish you all the best, and if there is anything i can do to help, please dont be too bashful to ask, im happy to help. peace~ 

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terri french


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-15 08:29:05

avatar healthyme

healthyme

12/19/2019 at 5:05 PM

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healthyme

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@terrilynn Thanks so much for this answer. It's true that the level of ignorance about HIV is shocking, especially considering it's been almost 40 years since this illness first appeared. Do you have a specific way of introducing the topic? I find it hard to bring it up.


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-19 17:05:57
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Unregistered member

12/21/2019 at 7:45 AM

@susanbant‍ I'm sorry you're having trouble with your family.  I live in the bible belt (Dallas) and I have learned that I simply have to tune out the ignorance that daily surrounds me. My advice to you is don't let other people's narrow mindedness limit your happiness. If your partner makes you happy then double down on that. If the people in question who are giving you grief refuse to get with times then do as Jesus said to do and after knocking once with no answer, turn away and don't let the dust settle on your feet. Hope things get better.


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-21 07:45:41

avatar terrilynn

terrilynn

Edited on 12/24/2019 at 10:00 AM

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terrilynn

Last activity on 12/24/2019 at 9:48 AM

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9 comments posted | 7 in the Living with HIV/AIDS group

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i think i would begin with showing them data, explaining that HIV is a livable issue. people w HIV have just as much of a chance of living a full life, have babies, etc.. as the next person. and make sure they understand that you love yourself, and your partner loves you, too much to take risks. and go from there. but they are just worried, and concerned for you, so try to keep in mind that they only have your best interest at heart. im sure they would rather work to accept your decision, than be forced to live without you in their lives. best of luck to you!

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terri french


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-24 09:56:28
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Unregistered member

12/27/2019 at 11:52 PM

 You are a grown up & this is your life. You could've denied it because the truth this is only you and your mate personal business but since you didn't now you're worried about what your parents and other family members thinks. If you really felt like you're educated and family is ignorant about it then don't concern yourself. Family members and friends are always going to try and insert they're belief on how you should be living. You have to be strong enough emotionally to block that out but this comes with maturity.  Maybe go get counseling too handle why do you care so much about what others think and why you're not focused on the love/bond in your relationship.  Opinions are like buttholes we all have them. Good luck 


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-27 23:52:34

avatar Bettethanbefore

Bettethanbefore

12/28/2019 at 1:27 AM

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Bettethanbefore

Last activity on 05/13/2020 at 7:46 AM

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@lifeisinteresting‍ That's exactly what I feel about this situation as well. If you love somebody and your ok with whatever, then it doesn't matter what anyone else has to say. They only have opinions, that's it..

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BTB


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-28 01:27:38
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Unregistered member

12/28/2019 at 1:38 AM

@Bettethanbefore Yes, we as people living with this disease have enough to worry about and then we take on other people's issues, smh.  It's unneccessary.  We have to focus on our well being and happiness.  Life too short.


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2019-12-28 01:38:00

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guardianofthenight11231

01/07/2020 at 2:37 AM

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Hi Susan,

Sorry for what you are going through, you are not alone; I am new to this and also in the same situation as many others, t the risk of being long winded let me just say; be patient with your family but at the same time keep doing what you are doing, it won't be easy but they will come around.


HIV and stigma https://www.carenity.us/forum/other-discussions/living-with-hivaids/hiv-and-stigma-1341 2020-01-07 02:37:43
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