Dystonia
Forum

Current topics:

• - Do your doctors or other people take your dystonia pain seriously?
  Hello one and all. I've had dystonia since 2007 - secondary since it was from a Brian injury.  My dystonia is cervical, axial, right arm etc I live my life now 50 percent of the time in bed. I am tr
• - I have dystonia and I struggle with the way people look at me
  Hi everyone, I hope this post is in the right place. I have cervical dystonia and the longer it goes on, the more it impacts my daily life. I feel like people are staring at me. The people I meet t
• - How do tremors impact your everyday life?
  Hello, Tremors are a common symptoms experienced by those with dystonia,and they can impact many daily tasks. What part of your body mostly suffers from tremors? Which tasks do you find the most diffi

Current topics:

• - CBD for muscle spasms?
  Hello,  has anyone had any success with CBD for muscle pain and spasm and twitches? If so, what dosage and brand? Is it vape, edible, or sublingual? I have tried vaping, I think it was 15 mg, but d
• - How do you manage the pain caused by your dystonia?
  Hello. I've had secondary dystonia since 2007 after a brain injury. I am so confused. I spend half of my life in bed. Before dystonia I was never in bed. I don't sleep. I'm in incredible pain.  Boto
• - Do you use Botox injections for your dystonia?
  Hello members, Botulinum toxin injections are one of the major treatments for focal dystonia.   Are you aware of this treatment? Have you had, or are your currently having, this treatment? If so,

Current topics:

• - Cervical dystonia, worsening eye sight, mouth pain/discomfort
  well after only recently finding out. I have this crazy condition, my Dr. is sending me on t another neurologist for some other problem’s, such as my eye sight getting much worse, abd they tell me m
• - Cervical Dystonia, but now nerve pain all over lower body?
  Hi everyone. I have been diagnosed with cervical dystonia and the symptoms I have had have always been centered around the neck region. However, recently I have experienced nerve pain into my legs and
• - Do you suffer from painful or disabling involuntary muscle movements?
  Hello, One of the main symptoms of focal dystonia is the appearance of involuntary abnormal movements related to the uncontrolled contraction of muscles. Do you or your loved one suffer from these i