Forum
Dystonia

Current topics:

• - Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
    Delphine's testimonialYears of diagnostic uncertainty facing Ehlers-Danlos Syndrome    When I was a child, I was already in pain. Back pain, stomach pain. I thought it was the same for everyon
• - What Natural Herbs/Supplements Have You Tried painful joints?
  Hello Carenity members, I have had numerous surgeries on my clavicle (in fact, I have the first ever done surgery on my clavicle and I am in some medical books - have basically very minimal of my ori

Current topics:

• - How can we live with chronic pain?
  My pain is 7 in 10 in the "easiest" days... I have allodynia,so I struggle with everything... I don't know what I can do to have a life more normal... 
• - Do you have a Bucket List?
  Hello everyone, You can call me movin_on. I am diagnosed with Parkinson's. For those of you who may not be familiar with this term, a Bucket List is a list of things that one has not done before bu
• - How to finish getting diagnosed
  It's been 2 yrs and I am not fully diagnosed with dystonia due to Drs confusion on my symptoms and tests are all clean. I stopped going cause of that but I am getting worse and I need to know what is

Current topics:

• - Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study
  Nearly half of women and one in three men are at risk of developing stroke or degenerative neurological diseases such as dementia and Parkinson's during their lifetime. Dutch researchers consider
• - Study: Air Pollution Linked To Higher Risk Of Dementia
  Alzheimer's Day is this Friday: September, 21 2018If you or a loved one is diagnosed with dementia, join the group and forum here.  Urban air pollution, mostly from vehicles, is associated with an

Current topics:

• - Share your first signs and symptoms of cervical dystonia
  I am curious as to the first signs or symptoms anyone with cervical dystonia remembers having. 
• - How do tremors impact your everyday life?
  Hello, Tremors are a common symptoms experienced by those with focal dystonia, which can impact many daily tasks. What part of your body mostly suffers from tremors? Which tasks do you find the most
• - Focal dystonia in right foot - doctor has lowered botox dosage and I am in pain
  My neurologist who has treated me with Botox for over 15 years what’s left her practice. The new doctor cut the dosage in half. I can barely walk. The burning and twisting keep me up and night. , I

Current topics:

• - Do you use Botox injections? Do you inject botulinum toxin?
  Hello members, Botulinum toxin injections are one of the major treatments for focal dystonia.   Are you aware of this treatment? Have you had, or are your currently having, this treatment? If so,
• - Medical Marijuana for focal dystonia - anyone with experience?
  I'm looking into medical marijuana as a symptom reliever of focal dystonia. Has anyone had any success out there using cannabis for focal dystonia?
• - Survey and Discussion: Botulinum toxin injections for cervical dystonia
  Hello, We are launching a new survey about patients' experience with Botulinum toxin A injections. Have you used them to treat your cervical dystonia? What is your experience with this treatment? Don'

Current topics:

• - Cervical dystonia, worsening eye sight, mouth pain/discomfort
  well after only recently finding out. I have this crazy condition, my Dr. is sending me on t another neurologist for some other problem’s, such as my eye sight getting much worse, abd they tell me m
• - Cervical Dystonia, but now nerve pain all over lower body?
  Hi everyone. I have been diagnosed with cervical dystonia and the symptoms I have had have always been centered around the neck region. However, recently I have experienced nerve pain into my legs and
• - Do you suffer from painful or disabling involuntary muscle movements
  Hello, One of the main symptoms of focal dystonia is the appearance of involuntary abnormal movements related to the uncontrolled contraction of muscles. Do you or your loved one suffer from these i