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Dystonia Forum

  •  150 members
  •  46 discussions

Our forum dedicated to dystonia brings together patients and relatives of patients. Let's discuss this disease of the nervous system together : symptoms, daily life, treatments... Let's exchange tips!

Medical fact sheet

Dystonia

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Living with
Symptoms and complications of
Treatments for
Living with conditions affecting the muscles, joints and-or skeleton
Living with neurological conditions

 Living with neurological conditions

Idiopathic Intercranial Hypertension

avatar BeautifulDisaster

avatar Lee__R

 Living with neurological conditions

How do you manage your neuropathic pain?

avatar Morgan101

avatar Stephanie.gay

avatar kiligreen

 Living with neurological conditions

Do you have a Bucket List?

avatar Foxconway

avatar SicilyNY

avatar Bipolarhelp

 Treatments for dystonia

CBD for muscle spasms?

avatar vskharytiuk

avatar hundal

avatar Helge11

 Treatments for dystonia

Botox injections loosing results?

avatar xsmaks

avatar BaneZO

avatar AzBuka

 Living with conditions affecting the muscles, joints and-or skeleton

What natural herbs or supplements have you tried for painful joints?

avatar Frank12

avatar hundal

avatar MichelleStack

 Living with neurological conditions

Introduction ♡♡

avatar Creader8

avatar Polina.K

 Living with neurological conditions

Head pressure

avatar MasonDavis1

 Living with conditions affecting the muscles, joints and-or skeleton

Myofascial pain

avatar Polina.K

avatar Yasha59

avatar smiles12

 Living with dystonia

Focal dystonia in right foot - doctor has lowered botox dosage and I am in pain

avatar ashlynschavezs

avatar jadensorrs04s

avatar JudiBeyond

 Living with neurological conditions

Applying for Supplemental Security Income (SSI)

avatar RubyVaughan

avatar MS_283

avatar Hydrocephalus

 Treatments for dystonia

Deep Brain Stimulation (DBS) for dystonia

avatar LizziB

 Treatments for dystonia

Survey and Discussion: Botulinum toxin injections for cervical dystonia

avatar Alla_Back

avatar russode

avatar Amsluvsfun

 Living with conditions affecting the muscles, joints and-or skeleton

Chronic fatigue syndrome and diet: Does it help?

avatar LizziB

 Living with neurological conditions

Introduction

 Living with neurological conditions

Motivation

 Living with dystonia

Do your doctors or other people take your dystonia pain seriously?

avatar betsyns

avatar Courtney_J

 Treatments for dystonia

How do you manage the pain caused by your dystonia?

avatar Courtney_J

 Living with conditions affecting the muscles, joints and-or skeleton

Getting mobile when you cant move

avatar achy38

 Living with neurological conditions

Do you have a support animal?

avatar DharmaOkemah

avatar SabinaYetta52

avatar Courtney_J

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Articles to discover...

Cervical Dystonia: “Medical profession thought I was making it all up, I couldn’t go back, so for the next 17 years I just tried to manage on my own!”

07/26/2023 | Testimonial

Cervical Dystonia: “Medical profession thought I was making it all up, I couldn’t go back, so for the next 17 years I just tried to manage on my own!”

Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study

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Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study

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Inflammation and diet: Which foods to avoid and what to eat instead

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Sun protection and chronic illnesses: How to stay safe in the sun

Screens and the brain: What are the risks of overuse and how can you protect yourself?

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Screens and the brain: What are the risks of overuse and how can you protect yourself?

Women's health: Why is medical research still falling short?

06/21/2025 | News

Women's health: Why is medical research still falling short?

Can you train your brain to feel happier, scientifically?

06/14/2025 | Advice

Can you train your brain to feel happier, scientifically?