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Dystonia Forum

  •  153 members
  •  46 discussions

Our forum dedicated to dystonia brings together patients and relatives of patients. Let's discuss this disease of the nervous system together : symptoms, daily life, treatments... Let's exchange tips!

Medical fact sheet

Dystonia

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Living with
Symptoms and complications of
Treatments for
Living with conditions affecting the muscles, joints and-or skeleton
Living with neurological conditions

 Living with dystonia

I have dystonia and I struggle with the way people look at me

avatar Courtney_J

avatar Jdsbruce

avatar mvmentme

 Living with dystonia

How do tremors impact your everyday life?

avatar Dyston!a

avatar Courtney_J

avatar achard

 Living with dystonia

What is your dystonia diagnosis story? Let's share!

avatar Dyston!a

 Treatments for dystonia

Do you use Botox injections for your dystonia?

avatar madalena

avatar Jaytwothree

avatar russode

 Treatments for dystonia

Medical Marijuana for focal dystonia - anyone with experience?

avatar Jaytwothree

avatar Chi910

avatar Awatchman

 Living with dystonia

Share your first signs and symptoms of cervical dystonia

avatar CrystalGiles

avatar mooshroomlady

avatar Foxyfoxm

 Symptoms and complications of dystonia

Cervical dystonia, worsening eye sight, mouth pain/discomfort

avatar Dyston!a

avatar mvmentme

 Symptoms and complications of dystonia

Cervical Dystonia, but now nerve pain all over lower body?

avatar mvmentme

 Symptoms and complications of dystonia

Do you suffer from painful or disabling involuntary muscle movements?

avatar Amsluvsfun

avatar mvmentme

avatar Dyston!a

 Living with dystonia

Physical Therapy after surgery to fuse bones together.

avatar help11

avatar Dyston!a

 Symptoms and complications of dystonia

Tremor in vision (not eyes)

avatar mooshroomlady

avatar Donnsi

avatar Dyston!a

 Treatments for dystonia

Deep brain stimulation? Selective denervation surgery?

avatar Leeroy52

avatar Dyston!a

avatar help11

 Living with dystonia

How do you sleep? Any suggestions?

avatar Lee__R

avatar Dyston!a

 Symptoms and complications of dystonia

Having to give up what I love... depressed

avatar Dyston!a

 Treatments for dystonia

Acupuncture and Dry Needling: Share experience and results

 Living with conditions affecting the muscles, joints and-or skeleton

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

avatar psori!!pt

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Articles to discover...

Cervical Dystonia: “Medical profession thought I was making it all up, I couldn’t go back, so for the next 17 years I just tried to manage on my own!”

07/26/2023 | Testimonial

Cervical Dystonia: “Medical profession thought I was making it all up, I couldn’t go back, so for the next 17 years I just tried to manage on my own!”

Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study

10/25/2018 | News

Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study

Study: Air Pollution Linked To Higher Risk Of Dementia

09/21/2018 | News

Study: Air Pollution Linked To Higher Risk Of Dementia

Can you train your brain to feel happier, scientifically?

06/14/2025 | Advice

Can you train your brain to feel happier, scientifically?

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

06/09/2025 | News

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

Sports and medications: 10 drugs that could harm your athletic performance

05/30/2025 | News

Sports and medications: 10 drugs that could harm your athletic performance

The fear of flare-ups: How to stop waiting for the worst and take back control

05/23/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

The identity shift: How to build a life that includes, but isn’t defined by, illness

05/05/2025 | Advice

The identity shift: How to build a life that includes, but isn’t defined by, illness