Survey and Discussion: Botulinum toxin injections for cervical dystonia

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Lee__R

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05/15/2019 at 6:27 PM

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Lee__R

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I also had the procedure and ordered the drugs. I had a botulinum injection 5 days ago. All I feel is like other weakness and injection sites. However, there is currently no proper effect.

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Donnsi

05/28/2019 at 8:04 AM

Donnsi

Last activity on 08/10/2019 at 5:16 PM

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6 comments posted | 6 in the Treatments for dystonia group

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Starting my Botox injection’s this Wednesday, hopefully it will help

Survey and Discussion: Botulinum toxin injections for cervical dystonia https://www.carenity.us/forum/other-discussions/treatments-for-focal-dystonia/survey-and-discussion-botulinum-toxin-injections-for-cervical-dystonia-985 2019-05-28 08:04:11

Chi910

05/29/2019 at 7:36 PM

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Chi910

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7 comments posted | 5 in the Treatments for dystonia group

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I just finished the survey. I’ve been getting injections for a very long time. I’m so pleased this is being discussed and studied.

Lee__R

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07/14/2019 at 7:01 PM

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Lee__R

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1,337 comments posted | 20 in the Treatments for dystonia group

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@Donnsi‍ How have the injections worked since starting them? Any noticeable results?

@Chi910‍ How have the injections improved the symptoms with your condition?

Lee__R

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Edited on 07/14/2019 at 7:46 PM

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Lee__R

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1,337 comments posted | 20 in the Treatments for dystonia group

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Hello members. Have you had an opportunity to participate in the survey? If not, I encourage you to click here to participate so that you can play an active role in your medical care.

If you have already participated in the survey, or after you do, you can come back here and continue the conversation with other members!

@Slj42‍ @Dearluly‍ @dystonialisa22‍ @Gloria6913‍ @charliet0477‍ @Nicholson13‍ @maritootles‍ @rooks71‍ @Judy747‍ @GCDavis‍ @ITGuy1‍ @Foxyfoxm‍ @mtlisa‍ @Raine061‍ @HeatherRMellott‍ @Phoenix28‍ ‍ @Jdsbruce‍ @2skatermom‍ @Syrina‍ @Armor2‍ @Janine‍ @creechr‍ @Bevkay‍ @libbistovall‍ @tinah0237‍ @sherrik‍ @Armor2‍ @dennisd51‍ @Ramchan‍ @gottes11‍ @coco57blue‍ @Elviscd1‍ @mtlisa‍ @Awatchman‍ @Cat0919‍

Chi910

07/14/2019 at 7:54 PM

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Chi910

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7 comments posted | 5 in the Treatments for dystonia group

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@Lee__R Amazing results for 3 months then must have injections again so ongoing. It changed my life. Are you considering them? I strongly recommend it. Please be sure to find a specialty doctor who know hoe to work with those with cervical Dystonia.

Unregistered member

07/14/2019 at 10:38 PM

Have a appointment with neuro in November. Fingers crossed it works.

Awatchman

07/15/2019 at 1:49 PM

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Last activity on 03/26/2020 at 5:40 PM

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28 comments posted | 23 in the Treatments for dystonia group

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Will be doing the EMG guided Botox injections. This is for the focal hand dystonia I am dealing with. Praying!

Unregistered member

07/15/2019 at 6:15 PM

I saw the neurologist today, she scheduled my first injections for August 28. I hope it helps.

Awatchman

08/05/2019 at 6:47 PM

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28 comments posted | 23 in the Treatments for dystonia group

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Well... I had 13 Botox shots in my right forearm last Monday. It's been 6 days since then and the only thing I have is weakness in my right hand and lower arm. Did not relieve the spasms or hand clenching yet. Will keep you up-to-date.

gladys916

08/05/2019 at 8:59 PM

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1 comment posted | 1 in the Treatments for dystonia group

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I started Botox injections in July. Did not alleviate the pain in my neck. So discouraged I am at a total loss as to what to do next. Cervical dystonia has totally changed my life, can't do much of anything I have pain 24/7 without any relief. Lying down helps if I keep my head perfectly still.

Survey and Discussion: Botulinum toxin injections for cervical dystonia

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