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Survey and Discussion: Botulinum toxin injections for cervical dystonia

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Survey and Discussion: Botulinum toxin injections for cervical dystonia

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21 comments

Lee__R

Community manager

05/15/2019 at 6:27 PM

Good advisor

Hello,

We want to know about your experience with botulinum toxin injections. Have you used them to treat your cervical dystonia Did you find them effective?

We are launching a survey all about the patient's experience with this treatment so don't hesitate to get your voice hear and advance medical research!

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Donnsi

05/28/2019 at 8:04 AM

Starting my Botox injection’s this Wednesday, hopefully it will help

Survey and Discussion: Botulinum toxin injections for cervical dystonia https://www.carenity.us/forum/dystonia/treatments-for-focal-dystonia/survey-and-discussion-botulinum-toxin-injections-for-cervical-dystonia-985 2019-05-28 08:04:11

Chi910

05/29/2019 at 7:36 PM

Good advisor

I just finished the survey. I’ve been getting injections for a very long time. I’m so pleased this is being discussed and studied.

Lee__R

Community manager

07/14/2019 at 7:01 PM

Good advisor

@Donnsi‍ How have the injections worked since starting them? Any noticeable results?

@Chi910‍ How have the injections improved the symptoms with your condition?

Lee__R

Community manager

Edited on 07/14/2019 at 7:46 PM

Good advisor

Hello members. Have you had an opportunity to participate in the survey? If not, I encourage you to click here to participate so that you can play an active role in your medical care.

If you have already participated in the survey, or after you do, you can come back here and continue the conversation with other members!

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Chi910

07/14/2019 at 7:54 PM

Good advisor

@Lee__R Amazing results for 3 months then must have injections again so ongoing. It changed my life. Are you considering them? I strongly recommend it. Please be sure to find a specialty doctor who know hoe to work with those with cervical Dystonia.

Slj42

07/14/2019 at 10:38 PM

Have a appointment with neuro in November. Fingers crossed it works.

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Sue J

Awatchman

07/15/2019 at 1:49 PM

Will be doing the EMG guided Botox injections. This is for the focal hand dystonia I am dealing with. Praying!

Raine061

07/15/2019 at 6:15 PM

I saw the neurologist today, she scheduled my first injections for August 28. I hope it helps.

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Raine

Awatchman

08/05/2019 at 6:47 PM

Well... I had 13 Botox shots in my right forearm last Monday. It's been 6 days since then and the only thing I have is weakness in my right hand and lower arm. Did not relieve the spasms or hand clenching yet. Will keep you up-to-date.

gladys916

08/05/2019 at 8:59 PM

I started Botox injections in July. Did not alleviate the pain in my neck. So discouraged I am at a total loss as to what to do next. Cervical dystonia has totally changed my life, can't do much of anything I have pain 24/7 without any relief. Lying down helps if I keep my head perfectly still.