Survey and Discussion: Botulinum toxin injections for cervical dystonia
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We want to know about your experience with botulinum toxin injections. Have you used them to treat your cervical dystonia Did you find them effective?
We are launching a survey all about the patient's experience with this treatment so don't hesitate to get your voice hear and advance medical research!
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Starting my Botox injection’s this Wednesday, hopefully it will help
I just finished the survey. I’ve been getting injections for a very long time. I’m so pleased this is being discussed and studied.
@Donnsi How have the injections worked since starting them? Any noticeable results?
@Chi910 How have the injections improved the symptoms with your condition?
Hello members. Have you had an opportunity to participate in the survey? If not, I encourage you to click here to participate so that you can play an active role in your medical care.
If you have already participated in the survey, or after you do, you can come back here and continue the conversation with other members!
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@Lee__R Amazing results for 3 months then must have injections again so ongoing. It changed my life. Are you considering them? I strongly recommend it. Please be sure to find a specialty doctor who know hoe to work with those with cervical Dystonia.
Have a appointment with neuro in November. Fingers crossed it works.
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Will be doing the EMG guided Botox injections. This is for the focal hand dystonia I am dealing with. Praying!
I saw the neurologist today, she scheduled my first injections for August 28. I hope it helps.
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Well... I had 13 Botox shots in my right forearm last Monday. It's been 6 days since then and the only thing I have is weakness in my right hand and lower arm. Did not relieve the spasms or hand clenching yet. Will keep you up-to-date.
I started Botox injections in July. Did not alleviate the pain in my neck. So discouraged I am at a total loss as to what to do next. Cervical dystonia has totally changed my life, can't do much of anything I have pain 24/7 without any relief. Lying down helps if I keep my head perfectly still.
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