How to cope when you can’t go to work or go out with your friends?
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I was just diagnosed with celiac and Crohn’s disease last month. I’ve been experiencing chronic symptoms for a few months before then. Since September I have missed over a month of work and I’ve only gone out with friends 3 times. My 22nd birthday was last month and I spent 75% of the weekend in the bathroom. That was before my diagnosis. I am now on a gluten free diet, taking Pentasa, Pepcid and a few other medications for my anxiety & bipolar depression. So my question is, how do you cope with missing out on everything? I’m at the point where I might lose my job due to how bad my symptoms are. I’m fine for a week then I get a flare up and have to call out again. I’m really lost and don’t know what to do at this point. I’m trying to stay positive but it seems there is no end and remission isn’t possible for me. Please help!
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I set up a meeting with my manager in the morning to disclose my disease/condition. He works remotely so the conversation will be over the phone. I am really nervous as I have a hard time talking about my state and really don't want what I say to be misinterpreted as some sort of excuse for anything. Any tips would be helpful.
@nittwitt3 okay so for me my manager actually came to me and asked me what was going on considering I was consistently missing work, coming in late, leaving early, always in the bathroom etc. I actually broke down crying, it was so embarrassing as I am very young and didn’t want to appear immature or weak. But my manager was very empathetic. He knew my work ethic and that it was unlike me to half ass my job. So I was very lucky in that sense. I was also brutally honest. I told him all my symptoms full disclosure and I had numerous doctors notes to back it up so they knew I wasn’t bsing. My doctor recently wrote an accommodation letter that also outlined all my symptoms and complications in depth that is now documented in HR to protect my job. It is/was embarrassing. But this is our lives and we have to live with it. We can only hope others will be understanding. If not I’ve accepted that a job is a job and my health/body is the only one I have. I can get a new job but I can’t get my life back. So I’ve actually taken time completely off until I am better. My employer completely understands but I did lose my position and will get a lower one if/when I go back. I’m okay with it. Let me know if you have anymore questions.
Try to see the bright side of things. Every day is different and you will feel differently - mentally and physically, but try to focus on the good things you have going on in your life... even if it is the most miniscule thing like being able to eat your favorite post crohn's food or watch your favorite tv show.
I know you have likely heard this a lot, but honestly the mental battle is the hardest. Tell yourself each day that it is a beautiful day and you are going to be ok!
@mr305! Thank you so much. I have been going to therapy and my therapist actually said your exact words lol. It definitely helps. Thank you ❤️
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