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Prednisone

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12/19/2020 at 10:07 PM

Has anyone who has been on oxygen gotten permanently off of it with prednisone.? Before I was on oxygen, I had to take prednisone on occasion and I know the damage it does and my doctor doesn't like it for sure. But then I read where some people stay on it for 10 years to keep themselves off of oxygen......Don't know what to think.

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slyounts1

12/19/2020 at 11:36 PM

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Last activity on 11/27/2021 at 6:21 PM

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I have taken a couple of short doses of Prednisone and I felt wonderful and I am hoping that in spite of the bad side effects the doctor will put me on a maintenance dose. I swear, I felt so good and could breathe so well that if I could have afforded it, I would have gone and bought the paint to paint the walls in this house! Now, to answer your question, my mom took Prednisone for years with no ill effects, except she might have been a little crankier than usual. Hard to tell, she was pretty feisty to start with. She did eventually end up on oxygen, but I think she avoided it for a good while. A friend of mine said her mother was also on it for years. Of course, my mom was monitored continuously as was my friend's mom for side effects and they both took calcium and had the injections. I guess it is a personal choice and it depends on how you feel. As it is for me, I have no quality of life, so I feel I have nothing to lose. Listen to your doctor, and a second opinion is not a bad idea.

Prednisone https://www.carenity.us/forum/copd/your-opinion-on-copd-treatments/prednisone-2889 2020-12-19 23:36:37

Cbeaudette

12/22/2020 at 3:20 PM

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Prednisone https://www.carenity.us/forum/copd/your-opinion-on-copd-treatments/prednisone-2889 2020-12-22 15:20:16

dee450

02/22/2021 at 6:49 PM

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I'm at the point to where i would rather breath in what ever time i have Mr Dr hates it but i buy mine online . i try not to take it daily but my body my choice .

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Dennis Grindle

Prednisone https://www.carenity.us/forum/copd/your-opinion-on-copd-treatments/prednisone-2889 2021-02-22 18:49:43

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02/23/2021 at 6:16 PM

Well, I have come to believe I will never be off oxygen. I was engaging in wishful thinking when I wanted to get off of it. I agree with all that has been said.

Prednisone https://www.carenity.us/forum/copd/your-opinion-on-copd-treatments/prednisone-2889 2021-02-23 18:16:15

Nancy2020

02/25/2021 at 3:25 AM

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I call for prednisone every time i feel bad and I listen a lot to my body to know what I’m feeling I believe in listening to yourself always

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Nancy2020

Prednisone https://www.carenity.us/forum/copd/your-opinion-on-copd-treatments/prednisone-2889 2021-02-25 03:25:58

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cbholder3

12/02/2022 at 3:21 PM

@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.

GSKForYou | GSK Patient Assistance Program

Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.

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CarolSchmidt

12/21/2020 at 10:35 PM

@KathyA‍, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.

Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!

She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!

Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.

The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.

There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.

Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)

I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!

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cbholder3

12/02/2022 at 3:21 PM

GSKForYou | GSK Patient Assistance Program

Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.

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CarolSchmidt

12/21/2020 at 10:35 PM

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Prednisone

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