What is it really like to live with Asthma?

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Patients Asthma

What is it really like to live with Asthma?


Posted on

 Question.  I have COPD/Asthma related.  I wake up in the middle of the nite coughing & air sacks are bursting....cant get air in.  Panic, use nebulizer then I cry cause it scared the shit out of me.

What is it really like to live with Asthma?


Posted on

Is there any hope for some of us that cant take the heat? I also have a hard time with extreme cold. I dont think my doctors know if its asthma or if its lung cancer. And I see others here have hiatal hernia and fatty liver disease. My hernia does cause problems but I just have to take antacid pills. I cant have surguries. I find that I am getting tired of doctor appointmets, tests, medicines.

What is it really like to live with Asthma?


Posted on

@BeachLife18 I definitely agree. I remember I had an injury and the orthopedic said it was a vascular and neurogenic issue, vascular doctor said it was orthopedic, neurologist said it was orthopedic. Everyone was point fingers in the other direction and I was left having to relay the messages and thoughts of one doctor to others... where was the collaboration?

What is it really like to live with Asthma?


Posted on

@Dldavis What do you mean by air sacs are bursting? You can hear/feel the crackling? Is it during inspiration or exhalation?

What is it really like to live with Asthma?

• Community manager
Posted on

Hi @Donmarie‍ 

I am sure that is pretty troubling for you to be uncertainty between asthma and lung cancer, in addition to your concerns regarding your hernia. 

I would suggest to you that you create a new discussion regarding your concerns about the uncertainty between asthma and lung cancer and your hernia concerns. Through creating a new discussion, you can title the subject something catchy that relates and encompasses your concerns so members when browsing the Living With Asthma forum who feel they have insight will see it and respond. Sometimes when members ask questions or address concerns inside a discussion of a different subject topic, those questions and concerns can become overlooked, unfortunately by members.

I would recommend creating the discussion here in the Living with Asthma forum by clicking the "Create a New Discussion" https://member.carenity.ushttps://www.carenity.us/forum/asthma/living-with-asthma-57 and/or in the Living with Lung Cancer forum by clicking the "Create a New Discussion"

If you need any assistance in creating your own new discussion, feel free to reach out to me.

What is it really like to live with Asthma?


Posted on

@rodrig_o94 sad to say that since doctors at times dont look at everything it causes a delay in treatmemt or even worsening of other health issues . I finally got lab test , exams , procedure notes and scan results and brought them all to a new Primary Care Doctor. I informed him of all the health issues that I have been diagnosed and my frustration of everyone pointing fingures at everything else. The multiple health issues that have been confirmed all can cause the same type of symptoms and can cause the other diagnosis. More collaboration must be done by doctors and doctors must read entire reports as I have had issues left out .

What is it really like to live with Asthma?


Posted on

@ have you ever had a sleep test done? And or heart checked.? I had issues where I had those type of symptoms its as if you have been puched and are trying to catch your breath which does causing some anxiety as you are just trying to catch your breath. I am not trying to scare you or anything . I found out that I had Diastolic Congestive heart failure which heart failure can affect your lungs ad they both go hand in hand. I also know people who have obstructive sleep apnea that would have the same type of symptoms (which doctor thought at first I may have) had mild sleep apnea. Good luck and hope you get some answers soon 

What is it really like to live with Asthma?


Posted on

My doctor told me once, if I could live in a bubble with the right amount of warmth, cool and humidity I would be fine, however one can’t live in a bubble, took awhile to realize I can’t take every day things for granted as I say normal people can

What is it really like to live with Asthma?


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@Donmarie me too!!!!! Always trying to re-write the book after it’s already been published, been there done that I wish they would just focus on the original diagnosis 

What is it really like to live with Asthma?


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@rodrig_o94 they don’t read medical records any more, they try to re-diagnosis us

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