Welcome to the respiratory conditions group! What's your diagnosis?

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Patients Respiratory system

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• Community manager
Posted on

Hello everyone,

I thought I'd create this discussion so we can get to know one another better! emoticon cute

In this group you can share your thoughts on respiratory conditions, how you cope with your condition in the day-to-day, how it affects you mentally, anything! If you have any questions you can also share them here!

So, let's introduce ourselves! What is your respiratory diagnosis? How long have you had it? How are you doing today?
@MayorG45@JessPotato@paulah@Mclaugj@Bearguy@Ledae4@esousek97@Virgo76@tonimarshall29@BrerRabbit@Mamawzoo@Flamingo3@snowdove102@Sandywood@Berry12@Jessica45qt@Mimi62@waco48@Sxynsmrt@Granni‍ 

Let's get the conversation started! emoticon bashful

Take care,
Courtney

Beginning of the discussion - 2/22/21

Welcome to the respiratory conditions group! What's your diagnosis?


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I have COPD; have problem breathing; on oxygen 24/7

Welcome to the respiratory conditions group! What's your diagnosis?


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I have COPD with emphysema and mixed sleep apnea . Was diagnosed in 2016 for the COPD and yesterday with the OSA

Welcome to the respiratory conditions group! What's your diagnosis?


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I have COPD and I’m on oxygen 24/7

Welcome to the respiratory conditions group! What's your diagnosis?


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I have lived with the diagnosis of COPD for the past 6 or so years now (stupidly smoked cigarettes for 61+ years before I quit, at least a pack a day but often up to two a day). I'm on a prescription inhaler, Spiriva, for the emphysema but sometimes I get a flare-up and the medication doesn't work as well as I would like. I told that to the nurse at my pulmonologist's office. She suggested that I might try taking an over-the-counter Bronkaid tablet when that happens because it was quite possible that I also had bronchitis, which is one of the other problems that often occurs with COPD. However, she absolutely insisted that I also I speak to the pulmonologist before I tried it. So, I asked him about it, he said that it couldn't hurt, and that some of his other patients have had success with it. So, when the Spiriva doesn't do the job within an hour I take a Bronkaid; it works. By the way, I take the medication at bedtime so I can sleep. During the day if I have a problem I do breathing exercises, some given to me by the pulmonologist and others that I've devised myself - problem resolved. 

Welcome to the respiratory conditions group! What's your diagnosis?


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I have pulmonary hypertension, Asthma and COPD(according to one doctor). I’ve had asthma since I was 3 and the rest since February 2020. I am on oxygen at night and during the day when moving around. “If your feet are moving then you need to have the oxygen on”, my pulmonologist said. 

Welcome to the respiratory conditions group! What's your diagnosis?


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I have Asthma, COPD, and Emphyzema and my blood carries carbon monoxide.

Welcome to the respiratory conditions group! What's your diagnosis?


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Merry Christmas and Happy New Year everyone.

Welcome to the respiratory conditions group! What's your diagnosis?


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Good after Christmas, hope all had a grand time.

i was diagnosed with Interstitial Lung Disease, and Polumnary Fibrosis, a.one with a few nodules in the lungs, and a los of about 25-30% lung capacity.

as I stated to the polumnologist, so this is what I get for smoking 30+ years, he said, you did not get this from smoking,  ok so exposure to various chemicals and powders and irritates, while in the military and working in manufacturing.

currently not taking anything but the occasional usage of albuterol as needed. According to my polumnologist and rheumatologist, this is most likely linked  to my RA also.

I Consider  my self lucky that this was caught early, I went in because of coughing 200+ times a day, even to passing out, and demanded CT and MRI, which my PCP was not interested in, however it helps to know people in high places,  A previous PCP, had just become chief medical officer, and I still had his cell number, one call, that afternoon all scans were completed.

and now I get these scans 3 times a year.  So far my progression has been very slow and minimal, though my medical team and I know that it will change and get worse.

so I try and keep myself prepared as possible.

oh and just as an aside, all this has been done through the VA

A Happy New Years to all

Welcome to the respiratory conditions group! What's your diagnosis?


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I have emphysema, which I gave myself by stupidly smoking from age 10 until I quit at age 71; I'm now 80. So far a medicated respiratory inhaler has given me relief but, as emphysema is progressive even under treatment, it's not working as well as it did. I do the breathing exercises my pulmonologist prescribed and have come up with a number of them myself which he is now prescribing to his other patients. I have held off the "normal" progression; my pulmonologist said in no uncertain terms that as I was diagnosed more than five years ago that I must be doing something right as his other patients who have had it for that long have been on home oxygen for quite some time. My goal is to never need home oxygen but it's a wait-and-see situation. I just take each day as it comes and do the best I can.