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Patients Prostate cancer

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Topic of the discussion

Member Carenity • Community manager
Posted on

Hi everyone, 

There has been many comments made about Lupron injections, the benefits/success, and side effects in several discussions, with some comments or questions regarding becoming lost in the unrelated topic discussions in which they are made.

Therefore, I am creating this discussion for members to discuss any questions and concerns they have regarding Lupron injections, from sharing experience, discussing the side effects, the success/benefits, etc.

(However, please feel free to also create any specific discussion topics related to Lupron injections)

 

Beginning of the discussion - 7/17/19

Experience with Lupron treatment and side effects
Member Carenity • Community manager
Posted on

Hi members. I had noticed you had expressed some concerns, questions, experience, or advice about Lupron injections on other other discussions. Since there were comments about Lupron injections spread throughout the Prostate Cancer forums, I wanted to let you all know that I have created this specific discussion for Lupron treatment discussion in hopes to help facilitate any future discussion on this topic. Hope this helps.

@Hidden username@Hidden username@Hidden username@Hidden username@Hidden username‍ ‍ 

Experience with Lupron treatment and side effects
Member Carenity
Posted on

Side effects are not fun: bone pain, joint pain, extreme fatigue, did I mention pain?

Experience with Lupron treatment and side effects
1

Member Carenity
Posted on

Lupron caused sever fatigue, joint pain, and no libido for me. I had the 45mg injection which lasted 24 weeks, and then some.

i also gained about 15 lbs.

Experience with Lupron treatment and side effects
Member Carenity
Posted on

 I have been lucky with the Lupron.  No significant side effects except fatigue.  But I am taking Efexor for depression and that prevented the hot flashes so far.

Experience with Lupron treatment and side effects
Member Carenity
Posted on

Fatigue, lassitude, could sleep forever, nausea (probably the worst S/E), muscle ache with exertion, purpura on arms, nocturia, fatigue.

Experience with Lupron treatment and side effects
Member Carenity
Posted on

I forgot to mention dysgeusia,  a terrible taste in the mouth.

Experience with Lupron treatment and side effects
Member Carenity
Posted on

I have been living with Lupron for the last two years.  Have been battling prostate cancer for 10 years and metastatic bone for the last two.  The Lupron has kept my PSA in check, but the bone pain, combined with the Lupron have worn me down.  Pain management with Norco gives me just enough relief to function, but being alive is not really living with much quality.  I am seriously considering just ending the Lupron and will be having that discussion with my oncologist this week.  Does anyone have any advice or suggestions?  I have always been a fighter with deep faith, but have run into a wall!  My God bless all of you that are fighting with this or any other type of cancer challenges!🙏

Experience with Lupron treatment and side effects
Member Carenity
Posted on

I am happy to have chronic fatigue.  This is far superior to any abusive urological woman's empowerment exercise or dominatrix spectator sport and l would rather die than be abused again by females and the male urologists who serve as their co-conspirators.  Why can men not be given professional examinations with respect for our dignity, privacy and safety?  I hope to expire with the chronic fatigue I am experiencing rather than have females abuse and torture me.  Nothing is worse than abusive torture as a pretext for a urological procedure.

Experience with Lupron treatment and side effects
1

Member Carenity
Posted on

@Hidden username 

my condition parallels yours. The bone paid and muscle aches became too much to bear. I was sent to the local university and was given the choice to stop the 90 day Lupron injections for some period. The upside is I will get a break from it’s effects, up to a year or longer. The downside is I won’t live as long. This is ok with me.