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Anyone have 4 metastatic bone cancer from prostate cancer
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jonlo11
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jonlo11
Last activity on 12/29/2022 at 11:41 AM
Joined in 2019
18 comments posted | 15 in the Living with prostate cancer group
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@Rbeck1234 sorry to hear you going through this. I have been there and hope I can lend a hand to you. What was done for your prostate cancer? When were you diagnosed with bone cancer? What is your current status and treatment?
Hope to hear from you soon.
Rbeck1234
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Rbeck1234
Last activity on 09/26/2021 at 7:48 AM
Joined in 2019
24 comments posted | 21 in the Living with prostate cancer group
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Not a good day. I have 4 metastatic bone cancer in my lower spine from prostrate cancer. Does anyone feel the bone aching , zero energy from hormone therapy? ( Nupron). Not liking it one bit!!!

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I agree with you on the Lupron injection; it really is an energy zapper and life changer.
Rbeck1234
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Rbeck1234
Last activity on 09/26/2021 at 7:48 AM
Joined in 2019
24 comments posted | 21 in the Living with prostate cancer group
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Some good news. My PSA numbers were so low, ( 0.05), that my Dr. took me off the Lupron for a couple of months. I did get bone strengthening shot though, which has a similar reaction ( Xgeva?).
Anyone want to discuss longevity?
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Rsmith21845
Rsmith21845
Last activity on 06/12/2025 at 1:55 AM
Joined in 2025
Patient, Prostate cancer since 2025
2 comments posted | 2 in the Living with prostate cancer group
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@Rbeck1234 I have stage 4 metastatic PC also. diagnosed 12/24 started Lupron in January and next shot is July every 3 months after that. I take 1000mg of Abiraterone daily and 5mg prednisone 2x a day. I have had 3 rounds of chemo or 6 total every 3 weeks. I am 62 years old. energy and stamina has been my issues but not terrible. I walk 2 miles a day and play golf as much as I can so thinking that is helping me there. I do take a re purposed drug daily. also apricot kernels ground up and spread over my breakfast daily. my psa has gone from 37 to .05 in 3 months.
you mentioned the doctor took you off lupron for 2 months so far? I would like to get off hormone therapy but it does not look like and option. Longevity is the area of uncertainty and my question doctor has been vague but would love ot hear success stories of longevity from stage 4 brothers also. what are your thoughts?
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jonlo11
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jonlo11
Last activity on 12/29/2022 at 11:41 AM
Joined in 2019
18 comments posted | 15 in the Living with prostate cancer group
1 of their responses was helpful to members
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Lupron messes with the hormones so has negative effects on energy. I am glad you have been taken off Lupron, so hopefully that helps with some of the issues. I wish I had experience with the bone strengthening shot, but I do not.
Rbeck1234
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Rbeck1234
Last activity on 09/26/2021 at 7:48 AM
Joined in 2019
24 comments posted | 21 in the Living with prostate cancer group
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@jonlo11
since I have been off Lupron for almost 2 months, I can feel life slowly returning to me. Tomorrow I do labs, so this might all change, but am enjoying it for now. It’s all about PSA numbers, stay tuned

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I hear and feel what you are saying.
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Rbeck1234
Good advisor
Rbeck1234
Last activity on 09/26/2021 at 7:48 AM
Joined in 2019
24 comments posted | 21 in the Living with prostate cancer group
1 of their responses was helpful to members
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hi all, I’m new to this. I hope to meet friends in my condition to discuss status, fears and what’s coming.