Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Living with prostate cancer
  • Anyone have 4 metastatic bone cancer from prostate cancer
 Back
Living with prostate cancer

Anyone have 4 metastatic bone cancer from prostate cancer

  •  108 views
  •  3 times supported
  •  11 comments

avatar Rbeck1234

Rbeck1234

06/05/2019 at 1:21 AM

Good advisor

avatar Rbeck1234

Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

Joined in 2019


24 comments posted | 21 in the Living with prostate cancer group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

hi all, I’m new to this. I hope to meet friends in my condition to discuss status, fears and what’s coming. 

Follow

Other groups...

Carenity News
Feedback for Carenity
Fun and games
General Topics
Good to know
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

How do you use Carenity? Share your experience!

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

All comments

avatar jonlo11

jonlo11

06/21/2019 at 4:54 AM

Good advisor

avatar jonlo11

jonlo11

Last activity on 12/29/2022 at 11:41 AM

Joined in 2019


18 comments posted | 15 in the Living with prostate cancer group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

@Rbeck1234‍ sorry to hear you going through this. I have been there and hope I can lend a hand to you. What was done for your prostate cancer? When were you diagnosed with bone cancer? What is your current status and treatment?

 

Hope to hear from you soon.


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-06-21 04:54:28

avatar Rbeck1234

Rbeck1234

07/02/2019 at 12:01 AM

Good advisor

avatar Rbeck1234

Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

Joined in 2019


24 comments posted | 21 in the Living with prostate cancer group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Not a good day. I have 4 metastatic bone cancer in my lower spine from prostrate cancer. Does anyone feel the bone aching , zero energy from hormone therapy? ( Nupron). Not liking it one bit!!!


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-07-02 00:01:40
avatar exit

Unregistered member

07/08/2019 at 7:58 PM

I agree with you on the Lupron injection; it really is an energy zapper and life changer.

 


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-07-08 19:58:17

avatar Rbeck1234

Rbeck1234

07/15/2019 at 10:43 PM

Good advisor

avatar Rbeck1234

Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

Joined in 2019


24 comments posted | 21 in the Living with prostate cancer group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Some good news. My PSA numbers were so low, ( 0.05), that my Dr. took me off the Lupron for a couple of months. I did get bone strengthening shot though, which has a similar reaction ( Xgeva?). 

Anyone want to discuss longevity?


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-07-15 22:43:28

Close all 

See the responses 

avatar Rsmith21845

Rsmith21845

05/13/2025 at 11:18 PM

avatar Rsmith21845

Rsmith21845

Last activity on 06/12/2025 at 1:55 AM

Joined in 2025

Patient, Prostate cancer since 2025


2 comments posted | 2 in the Living with prostate cancer group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

@Rbeck1234 I have stage 4 metastatic PC also. diagnosed 12/24 started Lupron in January and next shot is July every 3 months after that. I take 1000mg of Abiraterone daily and 5mg prednisone 2x a day. I have had 3 rounds of chemo or 6 total every 3 weeks. I am 62 years old. energy and stamina has been my issues but not terrible. I walk 2 miles a day and play golf as much as I can so thinking that is helping me there. I do take a re purposed drug daily. also apricot kernels ground up and spread over my breakfast daily. my psa has gone from 37 to .05 in 3 months.

you mentioned the doctor took you off lupron for 2 months so far? I would like to get off hormone therapy but it does not look like and option. Longevity is the area of uncertainty and my question doctor has been vague but would love ot hear success stories of longevity from stage 4 brothers also. what are your thoughts?


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2025-05-13 23:18:46

Hide the responses 

avatar jonlo11

jonlo11

07/17/2019 at 4:56 AM

Good advisor

avatar jonlo11

jonlo11

Last activity on 12/29/2022 at 11:41 AM

Joined in 2019


18 comments posted | 15 in the Living with prostate cancer group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

Lupron messes with the hormones so has negative effects on energy. I am glad you have been taken off Lupron, so hopefully that helps with some of the issues. I wish I had experience with the bone strengthening shot, but I do not.


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-07-17 04:56:34

avatar Rbeck1234

Rbeck1234

07/31/2019 at 7:36 PM

Good advisor

avatar Rbeck1234

Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

Joined in 2019


24 comments posted | 21 in the Living with prostate cancer group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

@jonlo11 

since I have been off Lupron for almost 2 months, I can feel life slowly returning to me. Tomorrow I do labs, so this might all change, but am enjoying it for now. It’s all about PSA numbers, stay tuned


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-07-31 19:36:51
avatar exit

Unregistered member

08/01/2019 at 5:03 PM

I hear and feel what you are saying.


Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/other-discussions/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-08-01 17:03:00

Give your opinion

Survey

How do you use Carenity? Share your experience!

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Articles to discover...

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

06/09/2025 | News

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

Sports and medications: 10 drugs that could harm your athletic performance

05/30/2025 | News

Sports and medications: 10 drugs that could harm your athletic performance

The fear of flare-ups: How to stop waiting for the worst and take back control

05/23/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

The identity shift: How to build a life that includes, but isn’t defined by, illness

05/05/2025 | Advice

The identity shift: How to build a life that includes, but isn’t defined by, illness

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.