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Follicular (non-Hodgkin) lymphoma: What is your experience?
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pal1210
pal1210
Joined in 2018
What is it? have not heard about that, only hear about lymphodema , how do you know if you have it?
AlyceMarie
Good advisor
AlyceMarie
Joined in 2018
I have five growths on my lymph nodes that the PET Scan checking on my colon cancer accidentally picked up on. I'm to see a ENT specialist to have a biopsy done now. Is this what your talking about possibly?
Alyce Thorning
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Alyce Marie Thorning
Maryellen
Maryellen
Joined in 2018
Hi Yes I have been diagnosed with non-Hodgkins follicular lymphoma. Just a watch and see approach. I feel fine. How about you?
AlyceMarie
Good advisor
AlyceMarie
Joined in 2018
@Maryellen Yes actually so far I do feel fine also. Of course my stomach is starting to cause me pain from colon cancer but if not for swollen glands and them lighting up like Christmas during my PET I'd never no I had a problem.
Thank you,
Alyce
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Alyce Marie Thorning
Maryellen
Maryellen
Joined in 2018
Hi Just had my 3 month check up and everything looks fine. He called it lazy, has not progressed. Next appt 3 months and pet scan 6 months. Feeling fine. Thank God! Hope you are doing as well.
Stacabirda
Stacabirda
Joined in 2020
@Krista1353 yes I have FNHL. I’m brand new here and this is my 1st anything.
I’m on chemo- finished 4 rounds out of 6 planned. Set to complete 2nd week of March. Lots of side effects and problems but worth the benefit of knocking my cancer away for the time being. My oncologist was adamant to say twice at my last office visit when I was suddenly excited over my midway PET scan results: “but it always comes back”. That’s about the only thing I took from that appointment
Stacabirda
Stacabirda
Joined in 2020
@Krista1353 what is it you’re looking to discuss?
TinaLymph
TinaLymph
Joined in 2021
@Stacabirda I also have FNHL, diagnosed in March. I don't really have any symptoms and we're doing a "watch and wait" method too since it seems like it's slow progressing. That's awful that your oncologist talked to you like that, they're supposed to supportive, not negative... Hope you're doing alright since.
AuntieDebba
AuntieDebba
Joined in 2022
Hi Krista
I was diagnosed with follicular lymphoma. 2020.. I did six chemo treatments and then radiation two times a day five days per week for several weeks. I am now doing RCHOP Chemo. This is my second week after my first treatment.
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Deborah Rock
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Is there anyone else out here with follicular lymphoma