Ollier disease
Forum

Current topics:

• - I am feeling alone and don't have anyone to talk to
  I'm feeling alone. I dont have anyone to talk to my kids are too little and my grandparents have enough to worry about and my husband just simply doesn't want to hear it I just got the news Wednesday
• - House fire took everything
  I am brand new to this website but I saw on google you can ask for help. I have cervical cancer and live on disability. An electrical fire destroyed my home last night and I lost my cat in the fire. I
• - Trouble eating during cancer treatment: What can I do?
  I know I lost plenty of weight, but I still cannot eat.  I feel hungry, but still can not eat.  I feel my ribs sticking out of my chest, but still cannot eat.  I know this is the worst thing I can

Current topics:

• - Anyone else having a difficult time managing side effects for cancer treatments?
  I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joi
• - Bone Cancer
  So many guestions...on pins and needles waiting for bone marrow test results March 14th. Alot is going on in my life. My wife of 48 years kicked me out of the house the day I saw the Doctor and he sai
• - Ovary transposition
  My friend (40 yo) was recently diagnosed with stage 2 cervical cancer and is evaluating treatment options. She will be undergoing chemo and radiation. It has been suggested that she can get an ovary t

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - What natural herbs or supplements have you tried for painful joints?
  Hello Carenity members, I have had numerous surgeries on my clavicle (in fact, I have the first ever done surgery on my clavicle and I am in some medical books - have basically very minimal of my ori
• - Getting mobile when you cant move
  Any tips on regaining mobility.just getting back on your feet has so many challenges looking for ideas and support on this topic..
• - Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
    Delphine's testimonialYears of diagnostic uncertainty facing Ehlers-Danlos Syndrome    When I was a child, I was already in pain. Back pain, stomach pain. I thought it was the same for everyon