Ollier disease
Forum

Current topics:

• - What is your cancer diagnosis?
  Hello everyone, I hope you're doing well. This group contains many different types of cancer. Though you may have different forms of cancer, I think there is somewhat of a shared experience across
• - Should we be getting an annual MRI after treatment?
  Should cancer patients be getting MRI yearly after they have completed their treatment?  My Oncologist said that my insurance will not cover it unless I am having symptoms.  Some cancers do not disp
• - Low back pain
  Has radiation caused anyone to have low back pain?

Current topics:

• - Are you satisfied with your relationship with your cancer doctors and medical team?
  Hello everyone, How are you today? Today I thought we could talk about patient-doctor relationships! Do you feel you have a good relationship with the health professionals who care for you or your
• - Anyone else having a difficult time managing side effects for cancer treatments?
  I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joi
• - Found a lump in my right breast
  Hello,  I am new on here. I guess I am searching for a little peace of mind and a listening ear. I am 23 years old, I was diagnosed with thyroid cancer at age 17.  I had my thyroid removed, and h

Current topics:

• - Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
    Delphine's testimonialYears of diagnostic uncertainty facing Ehlers-Danlos Syndrome    When I was a child, I was already in pain. Back pain, stomach pain. I thought it was the same for everyon
• - What Natural Herbs/Supplements Have You Tried painful joints?
  Hello Carenity members, I have had numerous surgeries on my clavicle (in fact, I have the first ever done surgery on my clavicle and I am in some medical books - have basically very minimal of my ori

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - COVID-19: Should we fear a second wave?
  Hello everyone, How are you doing today? As countries throughout the world are and have been coming out of lockdown and life is begining to return to "normal", many people and health authorities ha