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Patients Multiple myeloma

Newly diagnosed: Can you share any advice?

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CEstevez77

12/16/2021 at 5:42 PM

CEstevez77

Last activity on 12/16/2021 at 5:41 PM

Joined in 2021

1 comment posted | 1 in the Multiple myeloma Forum

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Hi,

I was recently diagnosed with multiple myeloma and I don't know a lot about what can I do or how to deal with it. I'm scared and confused.... Anyone out there that can give me some advice?

Thanks

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Courtney_J

Community manager

12/16/2021 at 6:01 PM

Good advisor

Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,339 comments posted | 11 in the Multiple myeloma Forum

6 of their responses were helpful to members

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Hi @CEstevez77‍, thank you for opening this discussion. Getting diagnosed with a rare condition can be overwhelming. Let me tag some other members who can possibly share with you.

Hi everyone,

Can you share any advice with @CEstevez77‍? Is there anything you would have liked to known when you were first diagnosed with multiple myeloma?
@tammyru2005‍ @kugie5‍ @JerryL65‍ @Joshleen‍ @kellykat38‍ @Icemanwess‍ @tpk777111‍ @Haledrive‍ @nikat315‍ @sharkna‍ @wildfry‍ @Peacock‍ @DickHall‍ @Carolynfranz‍ @dianneb_Eagle7‍ @CindyFrench‍ @Margiella‍ @rickallen2022‍

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Newly diagnosed: Can you share any advice? https://www.carenity.us/forum/multiple-myeloma/living-with-multiple-myeloma/looking-for-advice-4057 2021-12-16 18:01:27

sharkna

12/17/2021 at 1:49 AM

sharkna

Last activity on 09/12/2024 at 10:34 PM

Joined in 2021

1 comment posted | 1 in the Multiple myeloma Forum

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I have MGUS for 2 years now. The entire time I have discomfort in my upper back which is unusual. I treat with ice and heat and Gabapentin. Anyone else with MGUS experience this?

Newly diagnosed: Can you share any advice? https://www.carenity.us/forum/multiple-myeloma/living-with-multiple-myeloma/looking-for-advice-4057 2021-12-17 01:49:23

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DCline3dogs

02/18/2024 at 9:05 PM

I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.

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DCline3dogs

02/18/2024 at 9:05 PM

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