Newly diagnosed: Can you share any advice?

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Patients Multiple myeloma

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Posted on

Hi,

I was recently diagnosed with multiple myeloma and I don't know a lot about what can I do or how to deal with it. I'm scared and confused.... Anyone out there that can give me some advice?

Thanks

Beginning of the discussion - 12/16/21

Newly diagnosed: Can you share any advice?

• Community manager
Posted on

Hi @CEstevez77‍, thank you for opening this discussion. Getting diagnosed with a rare condition can be overwhelming. Let me tag some other members who can possibly share with you.

Hi everyone,

Can you share any advice with @CEstevez77‍? Is there anything you would have liked to known when you were first diagnosed with multiple myeloma? 
@tammyru2005@kugie5@JerryL65@Joshleen@kellykat38@Icemanwess@tpk777111@Haledrive@nikat315@sharkna@wildfry@Peacock@DickHall@Carolynfranz@dianneb_Eagle7@CindyFrench@Margiella@rickallen2022‍ 

Take care,
Courtney

Newly diagnosed: Can you share any advice?


Posted on

I have MGUS for 2 years now. The entire time I have discomfort in my upper back which is unusual. I treat with ice and heat and Gabapentin. Anyone else with MGUS experience this? 

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