Newly diagnosed: Can you share any advice?

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CEstevez77

12/16/2021 at 5:42 PM

Hi,

I was recently diagnosed with multiple myeloma and I don't know a lot about what can I do or how to deal with it. I'm scared and confused.... Anyone out there that can give me some advice?

Thanks

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Courtney_J

Community manager

12/16/2021 at 6:01 PM

Hi @CEstevez77‍, thank you for opening this discussion. Getting diagnosed with a rare condition can be overwhelming. Let me tag some other members who can possibly share with you.

Hi everyone,

Can you share any advice with @CEstevez77‍? Is there anything you would have liked to known when you were first diagnosed with multiple myeloma?
@tammyru2005‍ @kugie5‍ @JerryL65‍ @Joshleen‍ @kellykat38‍ @Icemanwess‍ @tpk777111‍ @Haledrive‍ @nikat315‍ @sharkna‍ @wildfry‍ @Peacock‍ @DickHall‍ @Carolynfranz‍ @dianneb_Eagle7‍ @CindyFrench‍ @Margiella‍ @rickallen2022‍

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Newly diagnosed: Can you share any advice? https://www.carenity.us/forum/multiple-myeloma/living-with-multiple-myeloma/looking-for-advice-4057 2021-12-16 18:01:27

sharkna

12/17/2021 at 1:49 AM

I have MGUS for 2 years now. The entire time I have discomfort in my upper back which is unusual. I treat with ice and heat and Gabapentin. Anyone else with MGUS experience this?

Newly diagnosed: Can you share any advice? https://www.carenity.us/forum/multiple-myeloma/living-with-multiple-myeloma/looking-for-advice-4057 2021-12-17 01:49:23