What is your multiple myeloma diagnosis story?

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Patients Multiple myeloma

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• Community manager
Posted on

Hello members,

Multiple Myeloma can have several debiltating symptoms, such as: bone pain, nausea, fatigue, vomiting...the list goes on and early diagnosis can be crucial in determining the success of treatments.

 

How were you diagnosed? What were the initial signs/symptoms that made you seek further medical advice?

Beginning of the discussion - 3/19/19

What is your multiple myeloma diagnosis story?

• Community manager
Posted on

Hello members, I hope you do not mind me tagging you. We encourage you to join in on the discussion.

@Gmoney@DonnaDalton@ltomich@kelli40@Julie123@Angiequi@Lureen@Queenhelene@Tinkerbell@Scrawford@Coop223@Hempire777@Helenj@Jenno2@BeckyW61@misskarent@Zuccaro‍ 

What is your multiple myeloma diagnosis story?

• Community manager
Posted on

Hello everyone, 

How are you feeling today? emoticon cute

I thought I would revive this discussion so we can all get to know one another better!

What was your diagnosis experience like? How old were you when you were diagnosed? What symptoms were you having that let you know something was wrong? What treatments have you undergone? How are you doing today? 
@apryllebh@Salliemd@Tinarbobber@Robvas61@Nicoleharris71@KimmieKay@kitwhit@Cheree2d@iamted@Michele720@Bmlynch102@kcwaters@Sarah68@Lavonp@MManko@Bnrung@ls3210@Bigred@LindaBook‍ 

Feel free to introduce yourself and share your story with us here! emoticon cute

Take care,
Courtney

What is your multiple myeloma diagnosis story?


Posted on

I was loosing blood, headaches n having heavy cycles. I went to my gyno n she ran some test n I needed a hysterectomy, so I had one n was released on a Thursday n started getting sick, couldn't walk or hold anything down, lost 20 pds in week. So I went to hospital and I was in renal failure. Before surgery they assumed I was a healthy 42 yr old, well I keep getting worse, with no answers n I was doing dialysis. 19 days later my kidney doctor, asked if anyone had checked my urine, I said nope so she did n a day later, she said I think I know what wrong with you n she said I'm not a oncologist n I have referred you to one. So I was tested for multiple myeloma and I was in a stage 3 n they basically said I was gravely ill. That was in 2011

What is your multiple myeloma diagnosis story?


Posted on

I am new to Carenity and I was diagnosed on May 29, 2021, with stage 3 multiple myeloma.  My first treatment was on June 4th.  I was in the hospital for about 3 weeks getting blood transfusions and chemo.  Since I have gone to the Oncology Center first once a week and now two times a month.  I have had every side effect possible; some are, weight loss, hair loss, leg swelling, and being nauseated.  This past week was the worst, out of commission for four days.  I am weak most days and cannot walk without a walker.  On July 4th I fell and broke my back! I am now in a Turtle Brace!  As all of you know there is no cure for multiple myeloma, only treatment to hold it at bay.  Each time I go to the Center, I get news such as no change, change for the better or worse.  The life expectancy with stage 3 is 2.5 to 6 years.  As a writer, I take this time frame seriously; it is difficult to hear when you have many writing projects planned.  However, today has been a good day.  

What is your multiple myeloma diagnosis story?


Posted on

My name is Rick Jackson! 
I found out March 2020 I had full blown MM! I had MGUS for 14 years never thought it would go too MM! I had chemo for 6 months for a stem cell transplant! But my numbers on my bone marrow biopsy went from 16% too 75% with treatment! So changed my treatment meds too Darzalex, dexamethasone and polymist! In time took me down too 2%! So had my stem cell transplant and in 90% remission! I have the high aggressive type with gain of 1!   Gain 1 of 21q! I take heavy maintenance! I have had before transplant 2 back surgery’s and a few broken ribs! Have lesions everywhere! I live each day like it’s your last cause some day it will be! Good luck too everyone and I pray every night God will bring me through this it’s in his hands

What is your multiple myeloma diagnosis story?


Posted on

Hi there, I just joined today. I was diagnosed a few months ago. I actually was diagnosed almost on accident. I had been having some bad leg pain and it turned out that I had a fracture in my femur! That started me on a series of tests and things and then I was diagnosed! I had anemia too which was discovered and I later learned that that often goes along with MM. It was honestly all very overwhelming. It's good to know I'm not alone.

I'm doing chemo and radiation too, @rickallen2022‍ that's really encouraging to here, I'm hoping to get a stem cell transplant too!

Stay well everyone

What is your multiple myeloma diagnosis story?


Posted on

Hello! My name is Cindy and I was diagnosed in February 2020. I had been dealing with anemia and fatigue for 2-3 yrs. Finally my PCP sent me to an oncologist and got my diagnosis. I was started on Velcaid and Revlimid. Then a stem cell transplant November 3, 2020. I just got the news last week that I have relapsed. Had my 4th bone marrow biopsy and I am waiting on results. They will determine my next line of treatment. This second time has hit me hard. I need to be patient and know they will get a plan soon. Just trying to live everyday and enjoy it. 

What is your multiple myeloma diagnosis story?


Posted on

So right live each day too the best it can be! Stay around positive people

What is your multiple myeloma diagnosis story?


Posted on

@CindyFrench I'm sorry to hear you've relapsed. i'm still relatively new to all of this and trying to understand all the treatment options and potential eventualities. Please keep us updated on how you're doing and any news you have, we'll be here cheering you on!

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