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Patients Multiple myeloma
What is your multiple myeloma diagnosis story?
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Betio68
I'm diabetic and have blood tests often, and my Primary Dr. Said you need to check with Oncology Dr., because you have a protein. When to Oncology Dr, and she was very good to tell me about the process to fallow, She need a BMB ( Bone Marrow Biopsy) , got done and the results was MM in 2nd stage. Never in my life heard of MM, after that she told me that need 4 treatments and Bone Marrow Transplant. I was 66 years old at the time, October 2019, Got the 4 treatments with KYPROLIS, Desamethasom and Revlimid, and I wasn't have any reactions only a little discomfort, got lucky to find a nice nurses at the Cancer Center, very helpful and caring, I love everyone. Next was ready for the Transplant but Covid-19 start and got to stop , until September 2020. I was in the hospital in October 23, got the transplant, was 17 days and didn't have any major problems. I'm 1 year from that day, and felling well only minor things, I'm in remission and only take Revlimid 5mg daily. Hope everyone doing well 🙏
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Jose
cnapolillo
I was diagnosed from bloodwork in April 2023. My GP sent me to a hematologist when my platelets went down to 120 and hemoglobin dropped to 11.8. I have zero symptoms of MM but my proteins are very high and bone biopsy showed 60-70 percent cancer cells. Been treating since June with no drug side effects. I continue to run 30 miles per week and race half marathons with no issues at all. Now I’m faced with a decision on a transplant and having a tough time saying yes since I feel so good. I’m 60 years old and concerned the transplant will change the way I feel and impact my fitness level which I believe is why I’m feeling so good even though I have a diagnosis of MM.
MarcBehAnalyst
I was diagnosed because I had an episode of syncope at a concert that resulted in an emergency hospitalization. At the hospital it was discovered as a direct result of needing a blood transfusion because of anemia.During the process of getting that transfusion it was discovered that I had Multiple Myeloma.
Deannaw
I am 54, I was diagnosed with MM in Jan of 2022. I was admitted to hospital on Nov 20 of 2021 for internal bleeding. I had a terrible toothache and face was swollen and I took to many ibprophen and tylenol for pain that I caused a tear in my stomach and caused internal bleeding. I had 2 blood transfusions and was in icu for 2 days. Was getting ready to ho home on day before Thanksgiving when a different doctor came in and was looking at CT scan and wanted another before he would release me. Within an hour another doctor came in and said they felt I had metastatic bone cancer and wanted me to meet with oncology. I had all testing done in December complete with pet scan and ending with bone marrow biopsy which was a dry pull. On day in January that I had doctor appointment for results there was bad snow storm so we did FaceTime call. I will never forget it as sure Noone else will forget time they were told. My world flipped upside down that January morning and changed forever. I was only 52 and almost to stage 3. It was being aggressive and still is.
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Deanna
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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Lee__R
Community managerGood advisor
Hello members,
Multiple Myeloma can have several debiltating symptoms, such as: bone pain, nausea, fatigue, vomiting...the list goes on and early diagnosis can be crucial in determining the success of treatments.
How were you diagnosed? What were the initial signs/symptoms that made you seek further medical advice?