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  • Lupus Symptoms and How to Mitigate Them
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Living with lupus

Lupus Symptoms and How to Mitigate Them

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avatar Lee__R

Lee__R

Community manager
11/20/2018 at 6:58 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,336 comments posted | 37 in the Living with lupus group

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Common lupus symptoms include headaches, fatigue, swollen joints, and fever. However, lupus symptoms can come in a wide variety and vary from person to person.

As the symptoms can vary from person to person, so can the prescribed medicines and alternative forms of treatments and medicines individuals use to mitigate the symptoms.

Please share the symptoms you experience and the methods you use to mitigate them

Also, feel free to comment and ask questions to others!

 

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avatar lupus38

lupus38

11/28/2018 at 6:00 PM

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avatar lupus38

lupus38

Last activity on 01/10/2023 at 10:56 AM

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91 comments posted | 49 in the Living with lupus group


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Hello,

For symptoms...  you name it, I get them: rashes, fatigue, pain, ulcers, brain fog, and dry mouth, fever...

I try to mitigate a flare as best as I can. I force myself to do moderate exercise regularly which seems to help with my fatigue and also take naps. This both seems to help with brain fog also. I take medications for the rashes and pain. I also wear UV protected clothing most of the time and a hat and try to avoid exposure to any UV type light.
 
 


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-11-28 18:00:48
avatar exit

Unregistered member

11/28/2018 at 9:56 PM

I was diagnosed with lupus 2 years ago. My symptoms were swollen joints and joint pain. As time goes by my symptoms have gotten worse. I have been getting really bad night sweat that I have to change my shirt at least twice a night. I wanted to know if anyone experience night sweats is this  from lupus ?? And if there is something I can do to stop the night sweats it’s horrible. 


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-11-28 21:56:05

avatar Bkeilholtz

Bkeilholtz

11/29/2018 at 4:46 AM

avatar Bkeilholtz

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Last activity on 01/30/2021 at 5:42 PM

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3 comments posted | 2 in the Living with lupus group


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@Ochoar I get the night sweats to.  Its horrible.  Also have a rash all over my arms and back and stomach. The spots burn and itch all day long. Nothing helps with the itching. Have you had the night sweats the whole 2 years?? 

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Brittany Keilholtz


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-11-29 04:46:20
avatar exit

Unregistered member

11/29/2018 at 9:53 PM

Yes I have had night sweats since the beginning but not as bad as now that I have to change my shirt. Also I get itchy rashes all over my body specially on my legs I mix Vitamin E oil with my lotion and that helps a lot or Vaseline. Have you tried oils maybe that will help  with the itching 


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-11-29 21:53:12

avatar revzany

revzany

12/04/2018 at 1:43 AM

avatar revzany

revzany

Last activity on 07/24/2019 at 7:37 PM

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2 comments posted | 1 in the Living with lupus group


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@Ochoar there is something to help with the rashes it's called betamethasone dipropionate cream 0.05% Use very sparingly it also helps with vasculitis if you don't know what that is your lower legs itch like crazy and nothing works to stop it this is the only thing that works and yes lupus causes this too.my doc wanted me to take steroid pills but I am diabetic and it drives my glucoses levels up.The only thing I can say dealing with 4 chronic illnesses is take and live every day to the fullest get a nap and keep agood outlook on life.


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-12-04 01:43:14

avatar Koko1072

Koko1072

12/06/2018 at 4:56 AM

avatar Koko1072

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Last activity on 02/18/2020 at 4:37 PM

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1 comment posted | 1 in the Living with lupus group


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I was diagnosed in 2013 and since then have had fatigue , headaches and joint pains. I have just developed the rash that is physically and emotionally wearing on me. It’s getting worse on my face , my chest and back are covered. Doctor has given steroid injection and topical cream but not much effect. My ankles are swelling more than ever before. Kind of feeling depressed.l about all of this. I have to work and feel embarrassed. Emotionally and physically exhausting 😔


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-12-06 04:56:52

avatar lupus38

lupus38

12/06/2018 at 5:23 AM

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avatar lupus38

lupus38

Last activity on 01/10/2023 at 10:56 AM

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91 comments posted | 49 in the Living with lupus group


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@Koko1072‍ I agree. It is dauting, tiring, and overall depressing and exhausting having to work with lupus!!

 


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-12-06 05:23:09

avatar lupus38

lupus38

12/06/2018 at 5:23 AM

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avatar lupus38

lupus38

Last activity on 01/10/2023 at 10:56 AM

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91 comments posted | 49 in the Living with lupus group


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@Ochoar I have never experienced night sweats. Is this a common symptom with lupus or is this being caused by another condition> Interested in knowing more.


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-12-06 05:23:51

avatar Marglen

Marglen

12/10/2018 at 11:42 PM

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avatar Marglen

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Last activity on 01/26/2023 at 12:32 PM

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40 comments posted | 15 in the Living with lupus group


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I can’t get rid of this fatigue. This is so frustrating.

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God bless you all!


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-12-10 23:42:19
avatar exit

Unregistered member

12/12/2018 at 7:20 PM

I thought I was the only one . I been feeling really down lately because of the holidays I want to do so much but I can’t and it’s so frustrating. I’m so tired and If i push myself I will pay for it the next day. Why is this happening to me 😥 night sweats / swelling , joint pain/ fatigue. I really feel like I’m dying inside. I’m having a flare 


Lupus Symptoms and How to Mitigate Them https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-symptoms-and-how-to-mitigate-them-604 2018-12-12 19:20:59
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