Posted on 12/12/18 7:20 PM
I thought I was the only one . I been feeling really down lately because of the holidays I want to do so much but I can’t and it’s so frustrating. I’m so tired and If i push myself I will pay for it the next day. Why is this happening to me 😥 night sweats / swelling , joint pain/ fatigue. I really feel like I’m dying inside. I’m having a flare
Posted on 12/17/18 8:08 PM
@Ochoar I don’t know. The whole thing is an enigma to me. Just rest as much as you can. Try to eat healthy. Make sure your labs are ok and do one thing at a time.
Sleeping late is the worst thing I can do to myself. I also feel like if I have a day of activity, I need two weeks for recovering. I’ve been dealing with more than one year with this extreme fatigue and YES it is so frustrating, but it didn’t stopped me. This just slowed me down. I need a lot of help in my days and I’m not ashamed to ask for it because I know my limits even though everyone tells me that I look great outside.
Posted on 1/4/19 7:54 AM
I notice if I eat anything in the nightshade family (tomatoes, potatoes, paprika, all peppers, anything good, etc.) I have a flare. First it starts with a swollen tongue and throat (but it’s not an allergy attack) then I get a low grade fever and then if I don’t get to bed right then I go down from there to sweating, red hot face, disorientation, and more.
It happens when I don’t eat nightshades too, but less frequently. Family stress is a killer for me.
Posted on 1/8/19 4:28 PM
Thank all of you for your post. It has helped me reading everyone's post. I am struggling emotionally with the loss of energy, painful joints and face breakouts. I sometimes just want to give up. I guess the hubbub of the holidays has worn me down emotionally and physically. I have made some big life changes in the past two years. I guess that is wearing me down too. Thanks for letting me vent. It is nice to have people that understand what you are going through.
Posted on 1/8/19 9:48 PM
@Laurag I had done huge life changes recently too due to my condition. Adapt and survive are my mottos now. Becoming vegan, moving to another country with family who truly care, and going to counseling are changes that I needed in my life in order to survive and adapt to my situation. There’s no warranty or the perfect formula to overcome this chronic physical condition but making those changes and put as my priority myself with so much love makes me feel so proud of myself.
thank you for sharing!
Posted on 1/8/19 10:48 PM
@Marglen thank you 😊!
Posted on 1/9/19 1:14 PM
Thank you for sharing. I was reading about myself. Tiredness, pain , flares etc. I’m in need of an operation on my spine on Friday, don’t feel I have the strength to handle the whole thing. very nervous about it. 4th one I had due to all this. Also very hard on my husband also. He has health conditions also from service. It gets hard for the both of us to deal. Thxs for listening🥴
Posted on 1/9/19 6:56 PM
@rabbit1947 Sending you thoughts for a successful surgery and a speedy recovery. Also sending thoughts of comfort.
Posted on 1/9/19 8:08 PM
Thxs so much. This is the last one he can do for me.
Posted on 1/22/19 9:54 AM
@rabbit1947 I read one of your inspiring posts. You mentioned you had back surgery. How are you doing?