Topic of the discussion
Posted on 3/14/19 2:24 AM
I'm still not 100% that my lupus causes my severe migraines as I was just recently diagnosed; but for 5 years now I've had one constant, excruciating migraine. Every day, every second, my head is in pain. I've tried everything I can think of and nothing helps.... does anyone else have this issue?
Beginning of the discussion - 4/16/19Dealing with Migraines when Diagnosed with Lupus https://www.carenity.us/forum/lupus/living-with-lupus/dealing-with-migraines-when-diagnosed-with-lupus-839
Posted on 4/16/19 11:34 AM
migraine is one of the common sign of lupus. If you doubt your migraine is caused by lupus, you can click the link to know more https://www.lupusuk.org.uk/headaches-and-migraines/
Posted on 4/29/19 1:05 AM
That was an incredibly informative article! Sadly though, none of it explains why mine has been constant for several years now :c
Posted on 7/1/19 2:53 AM
I wanted to let you know that Carenity has added a Migraine to the conditions - creating a new group specifically for migraines and a group of forums. The group has only been created a for a few days, so it is a growing community still, but I would encourage you to add it to your conditions so you can chat and share experiences and advice with others who are suffering specifically with migraines.
Add Migraine to your profile: https://member.carenity.us/conditions and click Add Condition. You will now have access to the Migraine group by just clicking "My Groups"
Access the group https://member.carenity.us/forum/my-groups?input=migraine
Posted on 7/16/19 10:58 AM
I have recently been diagnosed with Lupus in March and everyday for the last three weeks including my birthday I have spent in pain due to Migraines. I even went to the ER for the pain, and to have a CT scan. I have my PCP that says its due to my Lupus and my Rheumatologist who says it's not. It was hard enough for me to get a diagnosis for Lupus as every specialist I saw would tell me the thg didn't understand/know what was causing the problem for my Lupus. I am saddened by the medical community who continues to point fingers elsewhere leaving us feeling overwhelmed and in pain. I don't wish this on anyone.
Posted on 8/1/19 6:21 AM
I've had bad headaches and migraines since my early teenage years. Ones to where I go lay in a dark room, no light, comfy blanket and a box fan to block out any possible noise. Over the last few years it seems that headaches can come more often and migraines have resurfaced, before I was diagnosed with lupus. I've found it helpful to grab a frozen gel-pak from the freezer and use that.. in conjunction with tylenol and rest.
Posted on 8/2/19 3:59 AM
I have been getting migraines as well... any type of light seems to make it worse and I have not really been able to identify what is triggering them to become more often and intense.
Has anyone figures out what is triggering their migraines?
@johnboy7981 @jrosa711 @eleanee @Bean72 are you taking anything for migraines? have you found anything to help?
Posted on 8/2/19 7:52 PM
@mvn481 what I've found out on lupus.org is that individuals with lupus are twice as likely to have headaches and migraines, which are called 'lupus headaches'. It seems I have more when I'm in a lupus flare, where everything hurts; or if I've been in the sun or heat too long.
Posted on 8/3/19 11:14 PM
@mvn481 I've taken a few different prescribed medications for my migraines, but sadly nothing helps at all
Posted on 8/11/19 4:07 AM
@jrosa711 thanks for the tip, i am going to try the frozen gel pack. i feel like i have tried everything but don't exactly remember if i have tried that, though it's possible. at this point willing to try it all