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How do you manage your lupus fatigue?

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How do you manage your lupus fatigue?

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32 comments

lupus38

08/01/2018 at 6:22 AM

Hello everyone,

I am fairly new here and diagnosed with lupus. Over the last few months I have become increasingly fatigued. I need to speak with my doctor about this and plan on doing so, but I researched and it says fatigue is a common symptom of lupus.

Funny thing is, I have been diagnosed for about 2 years and only in the last 6 months have I begun to feel fatigued.

Has anyone else experienced that? What do you do for fatigue? Do you seek a doctor for it?

Thank you in advance.

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lupus38

10/09/2018 at 2:47 AM

@Kgrobe What do you mean by neurological manifestations?

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-10-09 02:47:08

Kgrobe

10/09/2018 at 3:16 AM

@lupus38 I have severe headaches, confusion, vision disturbances, extreme dizzines and balance issues. Fatigue comes along with it.

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-10-09 03:16:51

LynndMS

10/09/2018 at 5:31 AM

@Kgrobe‍ it’s not unusual to have neurological symptoms with Lupus, however it’s also not unusual to have more than one autoimmune disease ... maybe check in with a neurologist ?

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-10-09 05:31:08

lupus38

10/10/2018 at 5:07 AM

@Kgrobe‍ yes those symptoms, especially headaches (hell I call them migraines), vision issues, and dizziness. Lupus is an automimmune disease so it will affect our nervous system.

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-10-10 05:07:32

Kgrobe

10/10/2018 at 1:53 PM

@lupus38 migraine is a much better term. They are excruciating!

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-10-10 13:53:58

Biggness

10/31/2018 at 2:09 PM

My daughter has started having itchy breakouts on her face,arms and back. Has anyone else expeienced this?

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-10-31 14:09:41

LynndMS

11/01/2018 at 10:46 AM

@Biggness‍ hi ,

ive had many many different types of rashes including the type you describe. Always stay covered with long sleeves, pants (yes, even in summer ... lightweight pants are easy to find) and hat and sunscreen. I’ve always gotten that type of rash from sun exposure, however rashes can come on at anytime for any reason.

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-11-01 10:46:41

Biggness

11/26/2018 at 2:01 PM

@LynndMS thanks. I atleast feel better to know others have experienced too. i guess it just another thing to deal with. She is really catching it.

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-11-26 14:01:36

Unregistered member

11/27/2018 at 9:46 PM

I've been experiencing worsening bouts of fatigue and exhaustion. I have had Lupus over 14 years and also have Fibromyalgia and Sjogren's. I've spoke to my doctor and we've tried few different things. nothing really seems to help much any more .

How do you manage your lupus fatigue? https://www.carenity.us/forum/lupus/living-with-lupus/fatigue-and-lupus-330 2018-11-27 21:46:13

Ochoar

11/28/2018 at 10:06 PM

Has anyone experience night sweats ? my night sweats are so bad that I have to change my shirt twice a night and have difficulty sleeping for that reason. Is that a lupus symptom ??