Posted on 10/9/18 2:46 AM
thank you all for the enormous input. @Hidden username the fatigue to me just seems like I am hit with a bus... like I could just fall asleep at any given time and even if I do not have the ability to fall asleep (because my mind is wandering), I can hardly keep my eyes open once I try to start doing something.
@Hidden username what medication were you on for fatigue?
@Hidden username I may look into taking Ritalin or some sort of medication like that. Kind of worried how I would feel though as you stated.
I have, since the posting, tried putting myself on a sleep schedule, which has made some minor improvements. I also have tried Kratom - for the pain really - but through low dosages, I do get a burst of energy.
Posted on 10/9/18 2:47 AM
@Hidden username What do you mean by neurological manifestations?
Posted on 10/9/18 3:16 AM
@lupus38 I have severe headaches, confusion, vision disturbances, extreme dizzines and balance issues. Fatigue comes along with it.
Posted on 10/9/18 5:31 AM
@Hidden username it’s not unusual to have neurological symptoms with Lupus, however it’s also not unusual to have more than one autoimmune disease ... maybe check in with a neurologist ?
Posted on 10/10/18 5:07 AM
@Hidden username yes those symptoms, especially headaches (hell I call them migraines), vision issues, and dizziness. Lupus is an automimmune disease so it will affect our nervous system.
Posted on 10/10/18 1:53 PM
@Hidden username migraine is a much better term. They are excruciating!
Posted on 10/31/18 2:09 PM
My daughter has started having itchy breakouts on her face,arms and back. Has anyone else expeienced this?
Posted on 11/1/18 10:46 AM
@Hidden username hi ,
ive had many many different types of rashes including the type you describe. Always stay covered with long sleeves, pants (yes, even in summer ... lightweight pants are easy to find) and hat and sunscreen. I’ve always gotten that type of rash from sun exposure, however rashes can come on at anytime for any reason.
Posted on 11/26/18 2:01 PM
@Hidden username thanks. I atleast feel better to know others have experienced too. i guess it just another thing to deal with. She is really catching it.
Posted on 11/27/18 9:46 PM
I've been experiencing worsening bouts of fatigue and exhaustion. I have had Lupus over 14 years and also have Fibromyalgia and Sjogren's. I've spoke to my doctor and we've tried few different things. nothing really seems to help much any more .