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Patients Lupus

Fatigue and Lupus
Member Carenity
Posted on

Has anyone experience night sweats ? my night sweats are so bad that I have to change my shirt twice a night and have difficulty sleeping for that reason. Is that a lupus symptom ?? 

Fatigue and Lupus
Member Carenity
Posted on

Hi @Hidden username‍ I’m not sure if you’re female but I went through menopause very very young ... I was having drenching sweats. I’ve been on hormones which have helped but I’m having them again. I started at 43 ... the doctors kept acting like it was all in my head. I was sent to an endocrinologist who did blood work and I was off the charts in the menopausal hormone levels. I read autoimmune diseases can cause early menopause ... 

Fatigue and Lupus
Member Carenity
Posted on

thanks yes I’m a female , I’m only 35 yrs old. Is that to early for menopause?  I asked my rhemathologist he said it might be from inflammation but was not sure. I should be more firm and request more test

Fatigue and Lupus
Member Carenity
Posted on

Hello Ochoar and LynndMS,

I am new to the site. I joined the site as I feel no one understand what I am going through with my Lupus diagnosis and would like to communicate with others who can share and understand what I am going through on a daily basis.

I have night sweats several times a week. My doctor is a combination of menopause and Lupus related....whichever one it is night sweats are horrible. I am in my late 40’s and not sure I should be experiencing menopause yet. Also, I have been to soooo many doctors that would love me to believe that all the pain and symptoms I experience are in my head. I thank God for my primary care doctor who has helped me deal with my Lupus diagnosis. He treats with respect and dignity. He has NEVER made me feel like it was all in my head even if that is what he felt. I agree we have to be firm with the doctors and demand additional testing when we experience new symptoms.

Fatigue and Lupus
Member Carenity
Posted on

I dealt with the night sweats (and other bad female hormonal symptoms) for several years before I finally got relief. They’re back (night sweats) and I don’t know if it’s menopause symptoms worsening or Lupus symptoms ... I do have other inflammatory signs (rash on hands and a couple hugely swollen joints) ... so far this winter I’m either freezing or sweating and two of my sisters only had the “cold all the time” type of symptoms ...  I have a neighbor up the street (and others in the past) tell me I have to force myself to do this or that .. like be in the sun or heat (I have MS too) that’s a pet peeve. Also Ochoar, sometimes certain tests don’t show (like autoimmune disease testing) things.  The hormonal testing will show the truth (I think) and I once asked my rheumatologist why and he said antibodies will hide and it’s the nature of rheumatic diseases.  I’ve just been tested to death because of worsening symptoms and it showed some things off but rheumatoid factor equal to high normal (whatever normal is) so no explanation and they want to do more but I’m tired of it ...because I have Lupus, MS and Vasculitis they don’t know how to try and treat symptoms. I know MS doesn’t cause joint and rash symptoms ... pretty sure Vasculitis doesn’t either. Anyway sorry to go on ... and Welcome new beginnings40 ...