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Patients Fibromyalgia

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Member Carenity
Posted on

Hi guys, I am new here and a thing I have difficulty with is being in pain everyday and not feeling understood by others... sometimes others even feel that I am not really sick / in pain and that I am faking... does anyone else go through this?

I am in pain everyday... when I wake up my elbows and shoulders and nerves feel intense pain. I do not look disabled to others, but somedays, even lifting a pencil, can cause me great pain.

Does anyone suffer this? How do you deal with it?

Beginning of the discussion - 10/17/18

Do others understand what we go through?
Member Carenity
Posted on

@Hidden username‍ nobody who is not diagnosed with fibromyalgia or has a loved one diagnosed with it, truly believes what we are going through - that is my opinion anyways. I know doctors and therapists who do not even believe it and just feel we are faking! It is hear breaking!

I know what I am going through and what my body feels and what my mind senses... that is all that matters and all I Can do is take care of myself and not worry about making others believe me.

Do not stress them. If it is a loved one... that is a different story, but even then you cannot allow them to affect you.

Do others understand what we go through?
Member Carenity
Posted on

thank you for sharing curtaincall. I try not to stress about it; I feel that education on this condition among others and doctors and medical practitioners is very important.

Do others understand what we go through?
Member Carenity
Posted on

@Hidden username Probably one of the more difficult things with fibromyalgia... since we do not have a physical ailment that is visible to others, people tend to not understand what we go through. I used to work at Macy's years ago and had a co-worker who had myofascial pain or fibromyalgia - I honestly can't remember - but she had to call off occasionally because the pain was unbearable to her, but at work she looked normal to everyone. And everyone would say she was faking and just a complainer or not a hard worker when she would call off. I was never one of those people, but I heard about it often as I worked in the department. Fast forward about 15 years, and now I have fibromyalgia and I can only imagine what people think or say about me because I look normal from the outside by on the inside I am nagging in pain.