Topic of the discussion
Posted on 7/16/20 12:00 AM
How are you feeling today?
I thought I would open this discussion so we can all get to know one another better!
So, what is your fibromyalgia story? How and when were you diagnosed? What symptoms did you have that led to your diagnosis? How are you doing today? What medications or treatments have you tried? Do you have any advice to share with someone newly diagnosed with fibromyalgia?
@Drfootball @SabinaYetta52 @Dragonfly @Shanaynay @user_d296c_ci8hfbz1 @dingalingas @crkjkk @tlester451 @NettyJ @Samedu08 @LADYDAAI @Jen-ny @Vickijustvicki @Carlysm @sweetladyjayne @KristinaH92 @Marybeth @Shellibelli
Feel free to introduce yourself and share your story here!
Beginning of the discussion - 7/17/20What is your fibromyalgia story? Let's share! https://www.carenity.us/forum/fibromyalgia/living-with-fibromyalgia/what-is-your-fibromyalgia-story-lets-share-2229
Posted on 7/17/20 5:07 PM
@Courtney_J Hi, I went through quite a journey to get my diagnosis. I went to several doctors before I could get anyone to really listen to me. They tested me for rheumatoid arthritis, osteoarthritis, and neuropathy but obviously that wasn't it. They kept suggesting that it was all in my head and one doctor even told me to go see a psychologist. Eventually I found a great doctor who took the time to listen and after some more tests I got my diagnosis. But then when I was finally diagnosed some people in my family like wouldn't believe that I had a real, diagnosable condition, they still thought I was making it all up! Such is the plight of chronic illness patients I guess. Just because you can't see my illness doesn't mean it doesn't exist!
Posted on 8/11/20 4:46 PM
@toomuchpain Wow you've just described my experience to a t! When I was finally diagnosed with it my doctor explained that there is so that isn't understood in fibro that it can be hard to diagnose. I have some pretty bad neuropathy, and apparently in fibro cases the nerve damage isn't visible, so doctors used to have the tendency to think it was psychosomatic. Right now I'm on Cymbalta but I'm looking into alternatives.
Posted on 8/14/20 3:26 AM
Hi, I am newly diagnosed with Fibromyalgia and Neuropathy. I was initially diagnosed with MS in 2013. I was completely shocked that I was misdiagnosed. I constantly live with numbness and chronis pain. With medication and some lifestyle changes things have been somewhat better. I have had both good and bad days. I have found ways to make things easier for me. I taken up crocheting.
Posted on 1/14/21 6:40 PM
@SabinaYetta52 Wow I'm sorry that you were misdiagnosed! That must have been a roller coaster of emotions for you. What kind of lifestyle changes have you made, if you don't mind sharing? I'm open to trying anything at this point!
Posted on 1/15/21 3:47 AM
@toomuchpain Hi and yes it was a Rollercoaster of emotions for me. Some of the lifestyle changes I made were mainly diet changes. I am gluten free now as gluten makes my psoriasis worse and I get very itchy. I also cut a lot of soda. I ordered Cirkul water and now I drink more water than I have before. I am on medication which help my anxiety. I also have been walking a little more accept when I am in the I use a scooter to get around. I have also found ways to relax better by reading, doing puzzle books, and I have taken up crocheting. I hope this has answered your question.