Living with Fibromyalgia during the Coronavirus Pandemic

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Patients Fibromyalgia

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Hello all,

I noticed in the other groups that there are a few discussions set up about the coronavirus, so I though maybe we could have one here. 

I think we're all a bit in the same situation right now with the virus. It's not great fun being cooped up in doors, but my husband and I are doing our best to cope. I've been getting into some old unfinished crafting projects that I had put aside years ago so that's keeping me busy, but it has gotten harder and harder over the years with the pins and needles in my hands. But I'm struggling through it!

I hope you're all doing well and are managing your symptoms and medications! I was due for an appointment with my doctor this month but it's been cancelled as it's "non-essential".  Again, hope everyone is doing alright!

:)

Beginning of the discussion - 4/23/20

Living with Fibromyalgia during the Coronavirus Pandemic
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@fibrome Hi there, I'm just getting back on here after a bit of a break from the internet. I've been having more sleep problems since the lockdown started, and I'm guessing it's because I'm not getting out and about as I used to and I think it's playing games with my circadian rhythm. I'm comforted by the fact that primary fibro like I have doesn't affect our immune system so we're not particularly at a higher risk of complications than others, but staying at home is still hard on me mentally. I try to get out once a day for a walk and a brief stretch when I'm not having a flare up, but it's not enough so I've been feeling more achey and tired.

Has anyone had COVID-19 symptoms or know anyone who has gotten it? 

Stay safe!

Living with Fibromyalgia during the Coronavirus Pandemic
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@fibrome @toomuchpain Hello fibrome and toomuchpain, thank you for starting and commenting on this discussion! Let me tag some members who may not have seen the discussion!

Hello members, I hope you don't mind that I've tagged you! How are you doing during the lockdown? Have you been taking any special precautions? What are you doing to take care of your symptoms or your mental health during this time?

@user_d296c_ci8hfbz1@dingalingas@tlester451@NettyJ@Samedu08@Jen-ny@Vickijustvicki@Carlysm@sweetladyjayne@KristinaH92@Marybeth@Shellibelli@shaylee99@Shaysee13@julie1029@Dutchy007‍ 

Take care,

Courtney

Living with Fibromyalgia during the Coronavirus Pandemic
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Struggling with physical pain daily and trying to keep moving despite the pain. I haven’t been sleeping well at all which is definitely wearing me down however after 14 neuro surgeries nothing’s gonna keep me down and I consider it a blessing to be able to walk and use my arms and legs. Hang in there friends . We’re in this together 💜

Living with Fibromyalgia during the Coronavirus Pandemic
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I'm not doing bad, I usually don't go anywhere anyway.  I'm telling people welcome to my life, I've been in social distancing for years.  I had to go to the doctor for refills, they make me come in every month because I get Lyrica and Tramadol.  One Tramadol per day, woohoo.  I think that's ridiculous.  Anyway, because of the virus we had the visit online, which was awesome.

I don't have as much pain as I used to with my fibro as long as I take my Lyrica, but it seems like the fatigue gets worse over time.  I also have emphysema and chronic kidney disease, so I'm sure that's part of it.  Some days it feels like gravity has been increased and I weigh 3 times normal.  I can barely drag myself around.

Living with Fibromyalgia during the Coronavirus Pandemic

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I'm not doing bad as well. I really hoped that with being home all the time and taking walks around the neighborhood, I would start to feel my pain lessening. Instead it has got worse and it's harder to fight off the blues and the dark thoughts. I think when I'm busy the adrenaline flows and carries me through.

I feel guilty about complaining though since so many people are going through hell with the virus.

Living with Fibromyalgia during the Coronavirus Pandemic

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Really struggling with my sleep during all of this (hence my posting at the crack of dawn), has anyone else seen their sleep get worse during the lockdown?

Living with Fibromyalgia during the Coronavirus Pandemic

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@fibrome Hi, I have been stressed myself during this pandemic. I have been coping as best as I can. I have taken up a new crocheting project to keep me busy. I try to take walks as well. 

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