Coffin-Lowry syndrome
Forum

Current topics:

• - Thorn, Rose, Bud: Talking about our mental health
  Hi everyone, How are you today? I thought I would open this discussion to introduce a new activity to help us talk about our mental health!@castledepress‍ @Thaliamv‍ @Jayjenwalter‍ @Babygirl197
• - Do you know of any alternative methods for improving anxiety?
  How’s everyone doing?! I hop everyone is well. Been awhile since I’ve been on here.  I was wondering if any one had ideas as to how to help improve anxiety? Right now I can’t financially afford
• - Need a friend
  Im in a rough spot in my life. Ive been suicidal for sometime now, not happy, lonely, helpless, tired, unmotivated and so on. Im trying to get help, i really am, but its so hard. Im not real sure what

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - Dealing with isolation during COVID-19
  Hi, friends: If you are ( I pray you are) listening to the CDC recommendations and adhering to them, how are you dealing with your changed emotions? Any creative and new suggestions? Cheri
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos