Coffin-Lowry syndrome
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Current topics:

• - Bipolar, it's a lonely world...
   J am new on this site and I'm not sure how this all works just yet. So I guess I will just spit It out. I am a 39 year old woman living with Bipolar type 1. It is a living nightmare! I went undiagno
• - What do you do when your doctor won't listen to your mental health concerns?
  If a doctor doesn't tell you something is wrong with you, does that mean nothing is wrong with you? Like I feel as if I have depression, anxiety, ptsd, and bipolar disorder. I feel as if i have more,
• - My doctor won't refer me to a psychiatrist: What should I do?
  I have been through two unexpected deaths and my sister’s suicide in the past two years. I’ve tried many meds, but my doctor does not want to refer me to a psychiatrist. I’ve waited three years

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - COVID booster vaccine: What do you think?
  Hello everyone, I hope you're doing well! As you all may have heard, there has been discussion both in the US and in other countries about  a COVID-19 vaccine booster vaccine to be potentially lau