Coffin-Lowry syndrome
Forum

Current topics:

• - Need a friend
  Im in a rough spot in my life. Ive been suicidal for sometime now, not happy, lonely, helpless, tired, unmotivated and so on. Im trying to get help, i really am, but its so hard. Im not real sure what
• - Mental illness and social distancing - How are you doing?
  Hi, I haven't been on here in a bit, but I've been struggling lately with all of this. I struggle with bipolar disorder and anxiety. I'm hoping to share with you all and ask you how you're doing duri
• - Has COVID helped your mental health situation or harmed it?
  Been awhile since I have gotten in touch with you at Carenity.  A lot has happened since last I posted here.  Getting along great with friends, neighbors and family.  Much harder to judge someone

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - Coronavirus: Are you afraid of "bothering" your doctor or emergency services?
  Hello everyone, I hope you're all doing well. We will soon be publishing the results of our global survey on COVID-19 and chronic illness. This study allowed us to measure the impact of COVID-19 on
• - Telemedicine and COVID-19: What do you think?
  Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the the healthcare community turn more and more to telemedecine. Now, primary care physicians and other