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Patients Cerebrovascular accident

Relationships after a Stroke / CVA: Adjusting, support, new normal?
1

Member Carenity
Posted on

My mom had a stroke last week and in hospital. It was in the back left part of her brain. She is repeating her name over and over and now is refering to herself as a third person of a conversation...such as saying "(her name) doesnt listen"..and "( her name) is funny....Does anyone jnow why this is happening?

Relationships after a Stroke / CVA: Adjusting, support, new normal?
Member Carenity
Posted on

@Hidden username I'm sorry for what you have gone through.  I have had 2 strokes back in 2015, 1 hemoragic on one side and another non hemoragic on the other side.  I also have Lupus and was on Plaquinil.  One of the side effects of this drug is impaired vision.  I have since stopped taking the Plaquinil but I'm still having vision problems.  Unfortunately I don't have vision insurance so needless to say I have not been back to see an opthomologist in a couple of years. I didn't realize that having a stroke could change your vision.  I guess I need to find out more about the problems that can arise from having a couple of strokes.  Thank you for sharing as now I know I need to do some more research on this.

Have a very blessed and favored day.

I'm so very happy to have found this site as I have been alone in my health battles as far as having others to learn and share with.  Thank you so much for creating this wonderful venue.

You are literally changing lives! πŸ’•

Relationships after a Stroke / CVA: Adjusting, support, new normal?
Member Carenity
Posted on

Hey y'all I have had 2 diagnosed strokes but believe I have actually had 5.

1 hemoragic and the others non hemoragic.  I knew each time I was having a stroke it's weird. I feel like I have to walk on eggshells sometimes.  I also have Lupus and was told by my Dr that I have MS as well but have not been property diagnosed yet.  

Having this site has been a life saver for me.  I have been silent and just kept all these things to myself and after 28 years of living with so many issues that at 59 I think I need to talk to others and listen to what is working for them.  It truly sucks when you can't get out of bed because of the pain or the fatigue.  My poor husband, we just celebrated our 6th wedding anniversary and it has been really hard on him.  He actually had to quit his job to stay at home and take care of me.  He just went back to work full-time and when I am in a "rough patch" I remember trying to talk him out of marring me!  He calls me trainwreck and for good reason but he is a God send and I'm so thankful for him as he really makes me happy.  So I'm going to take the advice I have read an retrain my brain from this "stinkin thinking" to it's okay, we've got this

Thank you all for your help by sharing your stories as they are a source of help and healing.

Have a blessed evening πŸ€—πŸ™

Relationships after a Stroke / CVA: Adjusting, support, new normal?
1

Member Carenity
Posted on

I am 33 years old, and I had an ischemic stroke one month ago today. My husband was home at the time and called 911. I spent 4 days in the ICU recovering and undergoing tests to attempt to figure out why. My husband is the best, and slept in the ICU waiting room every night because he knew I needed him close. He has been amazing and encouraging, and wonnderful.

The issue is that he alternates between pushing me to do everything that I used to do right now, and looking at me like I am broken. I hate that look on his face, but I don't know what to do about it. 

I am doing well, and only have a twitch on my left hand some times as an after effect. I head back to work Tuesday of this week, and I am so nervous.

Relationships after a Stroke / CVA: Adjusting, support, new normal?
1

Member Carenity
Posted on

Hello   just found out I really had a stroke a couple of monhts ago...whew...I have been muddling around my house like a nut for weeks!!!          I found all of you    so glad we have things in common...and now this too!!!   Great to read and  and see others with a same condition.... as well.....holy cow...what  a situation..dragged on since January...finally able to sit down in front of my laptop and write..to fellow stroke people too...Lots of love  to all .....Jeannie Cole...hang in there everyone!!!   Its quite a ride!!!    

Relationships after a Stroke / CVA: Adjusting, support, new normal?
Member Carenity
Posted on

@Hidden username Hey friend I'm so sorry to hear about your mom.  My brother in law had a massive stroke and started hallucinating afterwards while he was in the hospital. I realize these are different issues but I told the nurse but she didn't think it was something she needed to call the Dr about. Because I was there I was able to tell the doctors.  They ran some more tests and said he was still having small TIA's.  I would talk her doctor just to be sure all is well.  Good luck and keep us posted.  You and your mom will be in our thoughts and prayers. God bless. πŸ™πŸ€—

Relationships after a Stroke / CVA: Adjusting, support, new normal?
1

Member Carenity
Posted on

@Hidden username Well hey there and welcome!  It would have been nice to get to know you under different circumstances but hey, we're still here!  So what happened that you had a stroke?  How has it effected your everyday life?  You must be kind of excited about going back to work... maybe a little,?  Don't be scared, you're got this.  Just think you have been giving a chance at doing something you have always done just with a different flare.  Feel the sense of accomplishment that you have earned by working at getting better and just maybe being able to be an example for someone else.

Good luck on your return to work on let us know how it goes.  Keep smiling and God bless youπŸ™πŸ€—

Relationships after a Stroke / CVA: Adjusting, support, new normal?
2

Member Carenity
Posted on

Hey folks my wife and I are just starting to go through all of this. We have been married 30 years and I have always been the one to take care of and support us now since December 14th of 2018 that stopped. Our world has been completely turned upside down like I can figure most of yours has also.

Relationships after a Stroke / CVA: Adjusting, support, new normal?
1

Member Carenity
Posted on

@Hidden username Hey friend,. I'm so sorry to hear about your situation.  Is there something that is really important that y'all need help with? If I may ask, what are the limitations if any from the stroke?  

Y'all are still here and it will be a change but it is also a learning experience for doing things but in a different way that works for both of you.  

You are on a great site for support so don't be afraid to reach out.

God bless πŸ™

Relationships after a Stroke / CVA: Adjusting, support, new normal?
1

Member Carenity
Posted on

Hey there I appreciate your input yes I have been very limited which is the hardest part of the strokes I am numb on the right side of my body which feels like it is asleep and tingling around the clock and the crazy thing is in my head the more I think the tireder I get and the worse everything gets