Topic of the discussion
Posted on 6/30/20 12:00 AM
How are you today?
@FAVORED1 @Jdsbruce @Emndarmic @Avives @urll56 @madalena @Acmartin1119 @Khoulihan @ClareF @kat1673 @Zozime69 @Keistinaruns322 @ragecrane @brian21 @Stepol @kathleeneden @Chynarose @dennisd51 @JBuchanan
I've created this discussion to allow you to share on how you are doing each day and life's little daily pleasures. It will also allow you to get to know each other and discuss on some lighter topics.
So, how are you feeling today?
Feel free to exchange and share right here! It's important that we support one another!
Beginning of the discussion - 7/3/20Spasticity: How are you feeling today? https://www.carenity.us/forum/spasticity/living-with-spasticity/spasticity-how-are-you-feeling-today-2147
Posted on 7/3/20 4:46 PM
@Courtney_J I had a rough night with spasms so I'm really tired, but other than that I'm doing my best to stay positive. When life give you lemons, make lemonade right?
Posted on 7/15/20 2:00 AM
Spasticity is a very difficult MS symptom that I deal with! Spasticity is my visitor every day. It comes out of nowhere and will take your breath away. My first experience with spasticity was at night. I thought that I was having leg cramps but these leg cramps were not like I had in the past. Walking did not help, ibuprofen didn’t help, heating pad was no help either. I finally resorted to taking a very warm shower. My leg cramps felt better but not me! The hot water had made me feel like a noodle. Since that time, my spasticity occurs anytime night or day. Daily, I am a lot of pain due to spasticity in my lower back, my upper back, neck, shoulders and hands! I take ultracet to help ease the pain and use Lidocaine 5% patches. Some days I look like a mummy. So far, nothing completely relieves my pain but I am very thankful that my medications at least ease my pain a little bit. My day usually depends on how I feel with all of my MS symptoms.
Posted on 7/15/20 4:33 PM
Does anyone have experience with the Baclofen pump? I'm currently taking 40 mg 3x a day orally but my neurologist suggested the pump, saying it may be less sedating..
Posted on 8/10/20 7:54 PM
@Scottrj76 yes, I was on 80mg 3x/day. The side effects made me have the intrathecal pump installed. Mine is adjusted at .8 mcg/hour. It is worth it in my opinion. Good luck!
Posted on 8/17/20 6:23 PM
When I was given baclofen for spasticity, if I exerted myself in the smallest way, I would black out. Also, walking outside in the shade but a 90+ day, I blacked out repeatedly.
My sister sent me a Help I can’t get up system after all of my blackouts. I told her I always had my phone but how did she expect me to push the button on her system when I was out cold and never knew when the blackouts were coming. I no longer take baclofen.
Posted on 9/28/20 10:30 PM
Hi my MS makes me tired and fatigue i have to push my self all the time to do things then the pain sucks i have problems with my legs that sucks more sometimes i dont know what to do its so bad i just found out a year ago i had it
Posted on 9/29/20 7:51 PM
Today is not a good day i am very tired and fatigue i am having problems with my legs today i am in pain i dont want to do nothin to day but i have to i cant let it get to me i got to fight it
Posted on 9/29/20 10:06 PM
My legs & back are giving me problems. Some anxiety from the spasms.....gotta go for a walk. Hopefully that might help.
Take Care & Stay Safe!
Posted on 10/1/20 1:49 AM
@Cynthia92 i am sorry to here that my back and legs get like that all the time my legs and feet have been giving me problem i dont know what to do about my feet cause i didnt think it could hurt ur feet well i hope u feel better. Take care