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Patients Rheumatoid arthritis

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Member Carenity
Posted on

 Hi everyone,

Is anyone else on Enbrel? Do you have difficult waking up? 

I am unsure if my condition is just progressing and work / anything active I do (shopping, errands, cleaning, etc.) is just wearing me out or if is Enbrel.

However, for some reason, this has become much more potent since I switched from Rituximab to Enbrel.

I now, when I finally do lay down, knock out in seconds and to wake me is almost impossible. I can sleep 12 - 16 hours a day, easy, if I do not have anything to do the next day that is pressing and time sensitive.

I set numerous alarms to wake me up and also bough the Sonic Boom alarm. which is supppppperrr loud, shakes the floor, and wakes up my whole house... but I can sometimes sleep right through it and it could go off for minutes to an hour until someone comes and wakes me up or comes home and hears it still going off.

Does anyone else deal with this issue... the ability to sleep through anything?

(Here is the Sonic Boom alarm if you want to see what I am talking about and how loud it is https://www.amazon.com/Sonic-Alert-SBB500SS-Extra-Loud-Flashing/dp/B000OOWZUK/ref=asc_df_B000OOWZUK/?tag=hyprod-20&linkCode=df0&hvadid=225367804776&hvpos=1o1&hvnetw=g&hvrand=5728251138348642485&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=1020613&hvtargid=pla-370740399108&psc=1)

Beginning of the discussion - 4/17/19

Enbrel? Can't wake up. I can sleep through anything... anyone else?
Member Carenity
Posted on

I’m so sorry you are feeling like this.  I am having major problems staying awake myself.  I think my ra is progressing because I will fall asleep while driving sometimes.  I’m scared.  Some days I can push myself to stay awake other days I just sleep.  I sleep all night then get up drink coffee eat a little breakfast then fall asleep in my chair. I will awake only to go right back to sleep.  And I am so weak.  I took enbrel twice never had any problems with the meds causing me to sleep.  I hope you find out something.  I’m headed to my rheumy this afternoon.  Gonna address this with him.  I’ll let ya know.  

Peggy 

Enbrel? Can't wake up. I can sleep through anything... anyone else?
Member Carenity
Posted on

@Hidden username How did it go with your doctor? I am sorry you are struggling with stay awake also.

@Hidden username I am sorry you are struggling as well. 

I have a difficult time in waking up also... But I too am unsure if it is the drug or just my RA or just everything I am going through. I too can sleep all day and can sleep through anything.

I however, once I am up, as long as I stay moving, I am OK. I can keep doing stuff, but once I sit down... boom - I can pass out. I do not drink coffee because I coffee / caffeine can worse my inflammation. I too @Hidden username‍ I can fall asleep as well well driving - or at least feeling like I am. I get really tired... it is so weird - as long as a I am actually moving my legs I can be awake, but the moment I sit down - it is lights out.

Enbrel? Can't wake up. I can sleep through anything... anyone else?
Member Carenity
Posted on

@Hidden username Thank you soooo much for responding. How did your appointment go?

Yes - I suffer the same thing. I can fall asleep anywhere once I stop moving. I too can try and force myself to stay up, but if I sit down - like driving also - my eyes become so heavy. I could be talking to someone, but if I sit down, no matter how interesting the topic, I can fall asleep.

It is good to know that maybe it is not the medication. I do not remember having this ability to sleep through anything a year ago before taking Enbrel, but maybe it is just a multitiude of things and Enbrel is just an additive.

What medication are you on if not Enbrel?

Enbrel? Can't wake up. I can sleep through anything... anyone else?
Member Carenity
Posted on

I have at the present time failed pretty much all the drugs so we are starting over.  I am on methotrexate injections weekly along with 10 mg prednisone that I have taken for years. And again trying plaquenil which last time I tried for years with no luck. My dr said that there is a promising new drug coming out mid summer and he will get me on it as soon as he gets his hands on it. I have an awesome RA doctor he works very hard to keep me going.  But I’ve been on all kinds of meds before.  Don’t get discouraged by me because he has very few patients like me   My husband was on enbrel for 14 years before it quit working on him   

Hope you have a great day 

peggy 

Enbrel? Can't wake up. I can sleep through anything... anyone else?
Member Carenity
Posted on

I’ve been on enbrel for 4 years. It has worked great for me. It is still helping with pain and swelling but about 4 months ago I broke out with a rash on my hands. It itches so bad. Keeps me up at night. Been to several doctors. I’ve been told it could be hives, eczema,,dermatitis, allergies. No one can help me  so frustrating  they all want to put me on steroids which makes me break out with horrible acne  anyone else have this?