Patients Rheumatoid arthritis
Topic of the discussion
Posted on 1/9/18 4:53 AM
Hello Carenity members,
This question touches home for me.
I would like to see what Carenity members (those with RA or caregivers of those with RA) find is the biggest struggle in living with Rheumatoid Arthritis? And how do you cope with the struggle or make it easier?
My mother, who suffers from rheumatoid arthritis, struggles most with opening up and getting into the morning on cold days.
I am interested in seeing what everyone else has to say.
Beginning of the discussion - 1/10/18What are your biggest daily challenges while living with RA? https://www.carenity.us/forum/rheumatoid-arthritis/living-with-rheumatoid-arthritis/what-are-your-biggest-struggles-in-living-with-ra-4
Posted on 1/10/18 4:57 AM
I have had RA for over 5 years now and like your mother, getting going in the morning tends to be the most difficult. I used to live in New York and it was much worse then, but since I have moved to Arizona the heat seems to have helped to a certain extent.
Another difficult thing is to button my pants! I have actually began to buy stretchy waistbanded jeans to get rid of that problem!
Posted on 1/26/18 3:26 AM
One of my biggest struggles is going grocery shopping, especially when I am flared up. However, what I do to cope with this or make it easier, is I order groceries online using Amazon Prime or my local grocery, which delivers. This helps because I do not have to go up and down the aisles pushing the cart, lifting the items I need, and then loading and unloading the groceries. Instead I just carry the groceries from my doorstep to the counter.
If I am home, which I usually am, I even have asked the delivery man to bring them in for me!
Posted on 1/29/18 3:44 AM
One of the biggest struggles I have is holding silverware, especially when I need to cut food with a knife. I was always so self-conscious about this, but I have gotten better.
I actually purchased special silverware that is made toward those suffering from RA. The silverware is larger, has a comfort grip, and is tilted for easier use. I have also tried silverware that is like a strap around your hand, which does not require use to use your fingers and thumbs. The muscles of your hand and elbow basically do all the work. This makes it much easier for those in advanced stages of RA.
I would recommend such silverware to anyone who is having a lot of trouble eating with and using the regular silverware. It is awkward at first when you use this type of silverware around others, but we should not be ashamed of our diagnosis. We should do whatever it takes to make life simpler, easier, and more enjoyable.
Posted on 7/23/20 6:02 PM
I agree with others on here, for me getting up in the morning is so hard, I really struggle with fatigue. Type and using a mouse at work can also be painful, I recently asked my company if I can get a special mouse and desk setup, we'll see if they approve it!
Posted on 8/4/20 4:20 PM
I am 24 and was diagnosed last month with RA, but I noticed symptoms in the middle of March. For me, the biggest struggle is holding onto anything with my hands. It hurts to carry my phone, carry a water bottle, open doors, or even typing on my laptop. Also the pain I feel when I first wake up in the morning makes it impossible to fall back asleep, so most days once I wake up once I am awake for the rest of the day.
Posted on 8/10/20 7:59 PM
Posted on 8/11/20 5:25 PM
I’m currently in a flare up and right now I’m experiencing a few struggles: slow moving, brain fog, I dropped a large glass bottle of hot sauce due to hand tremors. Luckily for me when I hang out with my friends from church and we go hiking or canoeing, they’re always looking out for me.
Posted on 9/23/20 4:12 PM
I have the same struggles as everyone else. I’m 38 and I was diagnosed at 18. Lately I have more difficulty preparing meals or doing stuff at work. I am a teacher. Exercising helps a lot and faith in Christ!
Posted on 6/10/21 5:16 PM
How are you today? Have you seen this discussion yet?
What are some of the biggest challenges in daily life with RA? Is it the joint pain or stiffness? The fatigue? The treatments? Something else?
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