Anyone have 4 metastatic bone cancer from prostate cancer

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Posted on

hi all, I’m new to this. I hope to meet friends in my condition to discuss status, fears and what’s coming. 

Beginning of the discussion - 6/21/19

Anyone have 4 metastatic bone cancer from prostate cancer


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@Rbeck1234‍ sorry to hear you going through this. I have been there and hope I can lend a hand to you. What was done for your prostate cancer? When were you diagnosed with bone cancer? What is your current status and treatment?

Hope to hear from you soon.

Anyone have 4 metastatic bone cancer from prostate cancer


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Not a good day. I have 4 metastatic bone cancer in my lower spine from prostrate cancer. Does anyone feel the bone aching , zero energy from hormone therapy? ( Nupron). Not liking it one bit!!!

Anyone have 4 metastatic bone cancer from prostate cancer


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I agree with you on the Lupron injection; it really is an energy zapper and life changer.

Anyone have 4 metastatic bone cancer from prostate cancer


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Some good news. My PSA numbers were so low, ( 0.05), that my Dr. took me off the Lupron for a couple of months. I did get bone strengthening shot though, which has a similar reaction ( Xgeva?). 

Anyone want to discuss longevity?

Anyone have 4 metastatic bone cancer from prostate cancer


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Lupron messes with the hormones so has negative effects on energy. I am glad you have been taken off Lupron, so hopefully that helps with some of the issues. I wish I had experience with the bone strengthening shot, but I do not.

Anyone have 4 metastatic bone cancer from prostate cancer


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@jonlo11 

since I have been off Lupron for almost 2 months, I can feel life slowly returning to me. Tomorrow I do labs, so this might all change, but am enjoying it for now. It’s all about PSA numbers, stay tuned

Anyone have 4 metastatic bone cancer from prostate cancer


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I hear and feel what you are saying.

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