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Anyone have 4 metastatic bone cancer from prostate cancer

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Rbeck1234

06/05/2019 at 1:21 AM

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Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

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hi all, I’m new to this. I hope to meet friends in my condition to discuss status, fears and what’s coming.

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jonlo11

06/21/2019 at 4:54 AM

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jonlo11

Last activity on 12/29/2022 at 11:41 AM

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@Rbeck1234‍ sorry to hear you going through this. I have been there and hope I can lend a hand to you. What was done for your prostate cancer? When were you diagnosed with bone cancer? What is your current status and treatment?

Hope to hear from you soon.

Anyone have 4 metastatic bone cancer from prostate cancer https://www.carenity.us/forum/prostate-cancer/living-with-prostate-cancer/anyone-have-4-metastatic-bone-cancer-from-prostate-cancer-1064 2019-06-21 04:54:28

Rbeck1234

07/02/2019 at 12:01 AM

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Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

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Not a good day. I have 4 metastatic bone cancer in my lower spine from prostrate cancer. Does anyone feel the bone aching , zero energy from hormone therapy? ( Nupron). Not liking it one bit!!!

Unregistered member

07/08/2019 at 7:58 PM

I agree with you on the Lupron injection; it really is an energy zapper and life changer.

Rbeck1234

07/15/2019 at 10:43 PM

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Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

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Some good news. My PSA numbers were so low, ( 0.05), that my Dr. took me off the Lupron for a couple of months. I did get bone strengthening shot though, which has a similar reaction ( Xgeva?).

Anyone want to discuss longevity?

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Rsmith21845

05/13/2025 at 11:18 PM

Rsmith21845

Last activity on 07/04/2025 at 12:16 AM

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Patient, Prostate cancer since 2025

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@Rbeck1234 I have stage 4 metastatic PC also. diagnosed 12/24 started Lupron in January and next shot is July every 3 months after that. I take 1000mg of Abiraterone daily and 5mg prednisone 2x a day. I have had 3 rounds of chemo or 6 total every 3 weeks. I am 62 years old. energy and stamina has been my issues but not terrible. I walk 2 miles a day and play golf as much as I can so thinking that is helping me there. I do take a re purposed drug daily. also apricot kernels ground up and spread over my breakfast daily. my psa has gone from 37 to .05 in 3 months.

you mentioned the doctor took you off lupron for 2 months so far? I would like to get off hormone therapy but it does not look like and option. Longevity is the area of uncertainty and my question doctor has been vague but would love ot hear success stories of longevity from stage 4 brothers also. what are your thoughts?

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jonlo11

07/17/2019 at 4:56 AM

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Last activity on 12/29/2022 at 11:41 AM

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Lupron messes with the hormones so has negative effects on energy. I am glad you have been taken off Lupron, so hopefully that helps with some of the issues. I wish I had experience with the bone strengthening shot, but I do not.

Rbeck1234

07/31/2019 at 7:36 PM

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Rbeck1234

Last activity on 09/26/2021 at 7:48 AM

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@jonlo11

since I have been off Lupron for almost 2 months, I can feel life slowly returning to me. Tomorrow I do labs, so this might all change, but am enjoying it for now. It’s all about PSA numbers, stay tuned

Unregistered member

08/01/2019 at 5:03 PM

I hear and feel what you are saying.

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Unregistered member

03/21/2019 at 1:00 AM

I made the decision to have my proste removed and it was not an easy time... just as hard as finding out you had prostate cancer... I was advised by my doctors the surgery was the best option because of my age and the harmful affects of radiation longterm. For me, once I made the decision, I did have the peace of mind knowing that the actual cancer was "removed" instead of just treated... which, I guess, did give me some sense of comfort.

The biggest issue for me once the surgery was done and I was on the road to recovering was the effects it had on me emotionally/psychologically, which many people in my opinion overlook. I encourage anyone and everyone, when diagnosed with prostate cancer, before and after treatment and during, to seek psychological help... there is nothing wrong with it. Medications, counseling, and just talking about your feelings can help tremendously. Do not hold it all in and try to battle the anxiety and depression because this diagnosis will affect you, no matter how strong you may consider yourself to be.

The sexual effects treatment has on you will also affect you mentally, because your sexual ability and ability to have kids will likely be affected. Your performance ability can be likely fixed, but it can still affect you mentaly. Take care of yourself.

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Unregistered member

03/21/2019 at 1:00 AM

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Anyone have 4 metastatic bone cancer from prostate cancer

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