Topic of the discussion
Posted on 1/16/18 4:04 AM
Hi Carenity Members,
I am hoping that the community here at Carenity with Psoriasis will use this forum to post what life is really like when living it with Psoriasis?
Please post your story about living with Psoriasis.
Include information that you feel would be important for a newly diagnosed person, family member, or caregiver to know.
The goal is that this discussion turns into a useful part of the forum where patients, newly diagnosed patients, family members, and caregivers could come for helpful information regarding what life is like for those living with Psoriasis and/or Psoriatic Arthritis.
Through a community we are stronger.
Beginning of the discussion - 1/18/19What is it really like to live with Psoriasis? https://www.carenity.us/forum/psoriasis/living-with-psoriasis/what-is-it-really-like-to-live-with-psoriasis-14
Posted on 1/18/19 4:25 PM
Hello all... I have had psoriasis sine I was 10 and I am no well older than that and the whole journey is and has been a struggle.
I have been watching during the early times of my diagnosis, before I got better at controlling it and mitigating triggering factors, my skin build up and cause rashes (plaques), which started primarily on my knees and elbows, but soon spread to the back and legs.
I could not and would not wear any clothing that reveals skin for fear of more rashes, and also for fear of stares. I got really depressed from this and no medications seemed to be "the miracle."
I luckily some years ago began to focus on my diet and incorporated many antioxidants, probiotics, and foods ant-inflammatory properties and it has helped tremendously. While I am still caution of the sun, I do from time to time were some clothes that reveal some skin!
Posted on 1/29/19 11:27 PM
I have had psoriasis for about 6 years now and Psoriatic Arthritis for the last 4... It all started when I began to experience joint pain in my primary joint areas... When I first began to experience the stabbing and severe joint pain in my elbows, and knees I did not think much of it at all and brushed it off... but as it got worse and I could now feeel it coming into my ankle and hands, I finally made an appointment with a doctor who informed me I had PA.
My joints at the time were swollen and inflamed. I was prescribed painkillers and anti-inflammatories... but I hate taking powerful drugs... So, luckily, through modifying my diet, I have eased the joint pain and inflammation to a noticeable extent!
Take probiotics, vitamin C, vitamin D, and eat a anti-inflammatory diet, so you are in a way prohibiting your body from becoming inflamed.
Posted on 2/14/19 7:48 AM
Hello members... hope you do not mind me tagging you, but wanted to restart this discussion and bring it to your attention. Thought it may interest you and be a good place to connect with others through sharing your own personal story and journey Psoriasis.
@Tapanbhavsar @aplseeds @tadhouse1 @Twiggi @Mousie @Pule101 @AntonioW41 @Jjhightal86 @havefaithalways @Tcburns1169 @larturi @Dottiedack @dollgrl50 @Pat1688 @jerryluger @victor58 @Jbwalraven @Deborahlee @pakridge @Jeancarenius @dillshau @Pwmeredith @drobinson1 @addi67918 @Thetrader1 @Abardack @Linni123 @Taylormomto6 @Ebonysue @tomion12 @Sis_65 @Lucy24 @Mirly124 @Tonya39 @Amber68 @jjhawj @Reaper71886 @Starke
Posted on 10/16/19 2:57 AM
I am diagnosed with plaque psoriasis. I am currently on Humira. I suffer from bouts of inflammation red skin on my skin and I also experience itching and burning skin commonly... when I experience a flare this is just intensified.
For me, beyond, but because of the symptoms, it keeps me from wanting to really venture out and go into public because I experience self-doubt and low confidence.
Posted on 2/25/20 4:18 PM
It's like any other person's life really. Once you get past appearances, we're no different from anyone else