Topic of the discussion
Posted on 3/31/20 12:00 AM
Since psoriasis is a chronic inflammatory disease, you are probably taking anti-inflammatory medications (corticosteroids, etc.), immunosuppressants (methotrexate) or biologics (Humira, Cosentyx, etc.). These treatments can weaken your immune defenses, however it is recommended not to stop or change them without the advice of your doctor!
Have you read the recommendations dedicated to patients with chronic conditions such as inflammatory diseases? Has your doctor warned you or reassured you about your treatments? Has he or she given you the procedure to follow in the event of coronavirus symptoms? Do you feel sufficiently informed as a patient?
How are you handling the social distancing and stay-at-home measures? Does this pose major difficulties for you in following your treatment, for your daily life with the disease? Feel free to share the difficulties you have to overcome, as well as ways to alleviate them as comments to this discussion!
If you haven't already seen, we've published a few articles that may be of some help and guidance to you:
Feel free to share your experiences, as well as any thoughts or questions you may have below!
Beginning of the discussion - 4/14/20Coronavirus and psoriasis: Is my treatment putting me at risk? https://www.carenity.us/forum/psoriasis/living-with-psoriasis/coronavirus-and-psoriasis-is-my-treatment-putting-me-at-risk-1743
Posted on 4/14/20 5:34 PM
@Courtney_J I've been worried since I'm on Humira. The whole point of TNF inhibitors is that they lower immune system response, so I'm afraid that it will make me more likely to catch COVID-19. I feel a little in the dark here, I've had nothing from my doctor or anyone else. I guess everyone else is staying home and social distancing?
Posted on 4/14/20 5:49 PM
@selano! I am on Methotrexate and Xeljanz which both cause me to be immunosuppressed technically and according to the information published by WHO and the CDC, it's advised that I social distance. Now in my state everyone is staying home so it's less difficult. You should to be extra careful and mind yourself. I was showing symptoms in early/mid March and my primary care doctor referred me for a test for COVID as I was in a high risk category along with my symptoms. I was luckily enough to get one and ultimately it came back negative, thank goodness. Stay safe everyone!
Posted on 4/21/20 5:58 PM
@selano! @insaenguihim Hello selano! and insaenguihim, thank you for your comments! How are you doing? Are your states still under stay-at-home orders?
Hello members, I hope you don't mind me tagging you! How are you all doing? How are you handling things during the pandemic? Have you been in contact with your doctor? What are you doing to stay busy?
@Daline22 @candy_crush @Babylioness31 @Marceloanderson @Bassboat @Kgokgo @Annie01 @Jennica @Moniqqa @bensafy @Tgurrola @tkouns @anthonyhjames @Justme#4me @Sunny1 @Dvansteenberg @Odiedirector
Posted on 4/29/20 3:47 PM
Hi @Courtney_J @selano! & @insaenguihim
I'm on methotrexate too, I thought about stopping my treatment at first by my doctor told me to continue. But I have to social distant. Even if more and more people stay at home around me, it's hard and scary. I can't see my folks, go to the store or just go for a walk... I feel really lonely and anxious and I spend most of my time watching TV. I don't know what to do...
Posted on 5/6/20 9:50 PM
@ribston1 I understand how you feel. Personally I'm an introvert so being at home hasn't been as stressful as I imagine it is for others, but I definitely miss my family too. That part is hard. Not being able to visit older family members and give them hugs is hard.
Posted on 5/29/20 5:14 PM
@psori!!pt I'm feeling better now, we can adapt to anything huh? And you, how are you feeling? I have a few introverted friends like you, they're more nervous now that everything is starting to re-open. They prefer to stay at home a bit longer than going back to normal life
Posted on 6/9/20 4:52 PM
How are you today?
How are you managing your psoriasis now? Is it more complicated this time of year? Have you returned to a "normal life" after these few months of lockdown? Have you noticed any flares or changes in your psoriasis post-lockdown?
Feel free to share! We are all here to help each other!