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  • Have you tried Ocrelizumab (Ocrevus)?
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Treatments for multiple sclerosis

Have you tried Ocrelizumab (Ocrevus)?

  •  1,028 views
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avatar broadwaylady

broadwaylady

02/12/2018 at 4:29 AM

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34 comments posted | 28 in the Treatments for multiple sclerosis group

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Hello,

I am currently taking Beta interferons and participating in physical therapy 3x a week. I also try to get sufficient rest each day and eat organic to help my body recover.

However, I learned of the new drug Ocrevus, which was just recently approved by the FDA. Has anyone tried it? An recommendations.

According to the Mayo Clinic, it says it treats both the relapse-remitting and primary progressive forms of MS. Clinical trials showed it reduced relapse rate in relapsing disease and slowed worsening of disability in both forms of the disease.

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avatar Jdduffy0305

Jdduffy0305

11/30/2020 at 6:57 AM

avatar Jdduffy0305

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2 comments posted | 2 in the Treatments for multiple sclerosis group


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I just had mu 4th infusion. And so far I have had very little flare ups. I also just had an MRI done of my brain and thoracic spine. Hopefully no new lesions are active. I will let everyone know.


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-30 06:57:20

avatar Mastercamp

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12/04/2020 at 7:27 PM

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2 comments posted | 2 in the Treatments for multiple sclerosis group


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My name is Richard I was diagnosed in 02 I started out with avonex then copaxone and many others The last one I was itaking was aubagio and it didn't feel like it was doing anynsgood what so ever? Now I have been doing infusion. And I will be going on my 5th one they were good at first. Now it's hard to say. I've been going through some legal problems which is not helping! 


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-04 19:27:40

avatar Mastercamp

Mastercamp

12/04/2020 at 7:47 PM

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MS is a terrible disease. I used to go over any terrain and know I would end up on my feet. Now I have problems just walking. But I am thankful thought, I was a carpenter and had to be good on my feet, and went many years without anybody knowing I had MS? But the last 4 years it's really taking its toll. My working days are over with? 


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-04 19:47:54

avatar Margann

Margann

12/05/2020 at 4:21 PM

avatar Margann

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Hi All 😊,

I am secondary progressive. I’m on Ocrevus. Year and a half now. Not sure if it’s doing anything. I have ok days and bad days


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-05 16:21:45

avatar Alexis

Alexis

12/06/2020 at 4:57 AM

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Do a lot of people on ocrevus have increased walking problems ?  I think about going on it but the most important thing to me is being able to walk my dog


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-06 04:57:29

avatar dan.varady

dan.varady

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Edited on 12/07/2020 at 5:10 PM

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avatar dan.varady

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94 comments posted | 24 in the Treatments for multiple sclerosis group

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I have been taking Ampyra, a specialized twice daily pill which helps protect the nerves in my legs, allowing me to continue to walk without any reaction to my infusions.  I have continued taking it through three different infusions, Tysabri, Lemtrada, and now Ocrevus.  The twice daily pill aids in my balance and gait, as wellemoticon highfive  

See the signature

Dan Varady


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-07 17:09:46

avatar 1DCROMO9

1DCROMO9

12/07/2020 at 8:21 PM

avatar 1DCROMO9

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I’m about to get my 5th Infusion of Ocrevus, and so far, I only had difficulty with my 1st Infusion. The day after, I couldn’t get out of bed. My Husband had to carry me to the bathroom, because when I tried to use my walker, my legs wouldn’t cooperate for a few hours. I didn’t have that trouble again. The Infusions have been arduous, but mainly “ uneventful.” I have Primary Progressive Multiple Sclerosis, and if anything, my condition hasn’t  gotten worse, which leads me to believe the infusions have “ delayed” that from happening.


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-07 20:21:10

avatar Wellsville_mom

Wellsville_mom

12/09/2020 at 2:09 PM

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This is good information. My doctor is thinking of putting me on it when I see her next. Right now I am not taking anything.


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-09 14:09:19

avatar mikeand75

mikeand75

12/20/2020 at 2:56 AM

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avatar mikeand75

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Last activity on 06/22/2025 at 8:31 PM

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I have been on Ocrevus for about 1 year and a few months. The only complaint I have is that it bothers my skin. That is it.


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-12-20 02:56:31

avatar Mastiffmom

Mastiffmom

01/02/2021 at 2:05 AM

avatar Mastiffmom

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Last activity on 03/18/2025 at 2:43 AM

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@Pelaton  what treatment was your neuro thinking that would help with your walking?  My husband has PPMS and just had his second round of Ocrevus   His walking is continuing to worsen at a rapid rate and I am desperately trying to help keep him mobile and as independent as possible   The Ocrevus has caused a lot of muscle spasms and deep pain so we need an alternative  

 

 


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-01-02 02:05:59
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