Have you tried Ocrelizumab (Ocrevus)?

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broadwaylady

02/12/2018 at 4:29 AM

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broadwaylady

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Hello,

I am currently taking Beta interferons and participating in physical therapy 3x a week. I also try to get sufficient rest each day and eat organic to help my body recover.

However, I learned of the new drug Ocrevus, which was just recently approved by the FDA. Has anyone tried it? An recommendations.

According to the Mayo Clinic, it says it treats both the relapse-remitting and primary progressive forms of MS. Clinical trials showed it reduced relapse rate in relapsing disease and slowed worsening of disability in both forms of the disease.

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Jenn0624

10/09/2020 at 8:56 PM

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4 comments posted | 3 in the Treatments for multiple sclerosis group

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I took Bioton but with no results. I actually had to purchase Hair Infinity and it worked. I did find out that low vitamin D can also cause hair loss. I take a very high dosage and its common in people with MS to have love vitamin D. I had to get a short hair cut and now have a 2 week nail maintenance bill now.

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Jennifer Scott

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-09 20:56:33

Dianna67

10/15/2020 at 1:13 AM

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Hi. I just found out aubagio doesn't look like in over 2yrs has helped. Short story neurologist sending info about this med. Anyone able to tell the good or bad of they're experience.

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Dianna G Simpson

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-15 01:13:21

dan.varady

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10/15/2020 at 4:08 PM

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dan.varady

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@Pelaton Are you RRMS? I have been on Ocrevus since it was FDA approved and also take 2 Ampyra tablets, daily. This medication helps protected the myolen on the nerves in the legs.

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Dan Varady

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-15 16:08:36

Pelaton

10/15/2020 at 4:21 PM

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@dan.varady Yes, I am RRMS and did try the Ampyra a while ago but it did not agree with me - too many side effects. So I have just stayed on the Occrevus but my walking is not getting any better and I am not confident that the Occrevus is working at all. Will try the scheduled Dec dose and then rethink my medications and talk to my neurologist.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-15 16:21:15

dan.varady

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10/15/2020 at 4:23 PM

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@Pelaton Have you tried Tysabri?

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Dan Varady

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-15 16:23:22

Pelaton

10/18/2020 at 10:20 PM

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@dan.varady No I have not tried Tysabri. I get worried about changing my medications too frequently but do you know anything about this medication? I can ask my doctor about it.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-18 22:20:24

dan.varady

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10/18/2020 at 10:23 PM

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I would go with Ocrevus, having the two I feel the time between infusions (6 months). Is better for a patient than the four weed between infusions.

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Dan Varady

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-18 22:23:18

Alexis

10/29/2020 at 4:42 AM

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@dan.varady Hi I've been on aubagio since last October and my white blood cell count has dropped drastically. My neurologist actually just cut my dose from 14 to 7 in the hopes that my white cells will come up. So far I guess the drug is holding me. I guess ill find out after the MRi that was ordered to make sure no disease activity is occurring. Good luck with this drug. I would recommend doing bloodwork to check your blood. A CBC with differential is what would show levels of all your different blood cells.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-29 04:42:38

Alexis

10/29/2020 at 4:45 AM

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Is anyone JC positive and worried about PML? Im having a hard time choosing a new medication if it turns out I have to off of Aubagio because its affecting wy white count. Im trying to find a drug that I don't have to worry too much about PML with.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-29 04:45:26

dan.varady

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10/29/2020 at 10:31 AM

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@Alexis I tested JC positive on Tysabri and the Ocrevus has been a great medication for me. You have to remember, like every patient, every medication may have different results for patients.

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Dan Varady

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-29 10:31:08

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