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  5. Treatments for multiple sclerosis
  6. Have you tried Ocrelizumab (Ocrevus)?
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Treatments for multiple sclerosis

Have you tried Ocrelizumab (Ocrevus)?

  •  952 views
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  •  67 comments

avatar broadwaylady

broadwaylady

02/12/2018 at 4:29 AM

Good advisor

Hello,

I am currently taking Beta interferons and participating in physical therapy 3x a week. I also try to get sufficient rest each day and eat organic to help my body recover.

However, I learned of the new drug Ocrevus, which was just recently approved by the FDA. Has anyone tried it? An recommendations.

According to the Mayo Clinic, it says it treats both the relapse-remitting and primary progressive forms of MS. Clinical trials showed it reduced relapse rate in relapsing disease and slowed worsening of disability in both forms of the disease.

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avatar Robin31

Robin31

08/03/2021 at 5:04 AM

How does everyone do with the temperatures 


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-03 05:04:25

avatar dan.varady

dan.varady

Ambassador
08/03/2021 at 5:06 PM

Good advisor

After the third dose , I consulted with my neurologist and we pushed treatments to 5 1/2 months between treatments.  It still keeps me without lesion activity or development.

See the signature

Dan Varady


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-03 17:06:02

avatar errolsweet

errolsweet

08/07/2021 at 7:22 PM

@Mpuop02Ma I have used ocrevus for 1 year now.  This method seems to make me better,  but its too early to tell.

See the signature

Errol R Sweet


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-07 19:22:55

avatar errolsweet

errolsweet

08/07/2021 at 7:24 PM

@Robin31 I'm not good with the real cold or very hot temperatures 

See the signature

Errol R Sweet


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-07 19:24:33

avatar mikeand75

mikeand75

08/07/2022 at 2:54 PM

Good advisor

Good morning, everyone. I have been on Ocrevus for three and a half years. I have not had problems losing my hair. I am fortunate. Have a great week.


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2022-08-07 14:54:11

avatar mikeand75

mikeand75

12/30/2022 at 6:45 PM

Good advisor

Hello everyone. I have been on Ocrevus for three years. I go two times a year for my infusion. I feel rejuvenated after my infusion. Please research before giving it a try!! Good luck!!! Happy New Year to you and your family!!


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2022-12-30 18:45:55

avatar LizziB

LizziB

Community manager
03/13/2023 at 3:29 AM

Good advisor

@mikeand75 @errolsweet @dan.varady @Robin31 @Mpuop02Ma @MyMS55 @brentfordfc @Mcguire @Lpl616 @Jdduffy0305 @Mastercamp @Margann @Alexis @1DCROMO9 @Wellsville_mom @Mastiffmom @brentfordfc @Jenn0624 @Dianna67 @TCrisafulli @looking4 @FrancesCarner @maryanna @inkygirl @padres44 @jlmarnp @Dottie.jenkins

Hi everyone

How are you doing today?

This thread on Ocrevus got many responses. I would like to invite you all to use the new Carenity feature which allows you the opportunity to rate your treatment. You can leave your opinion on past or current medications. Acting similar to this thread, the tool allows people to look up drugs they are considering taking and see what experiences Carenity members have - does it help reduce symptoms, what are the side effects, how easy is it to administer, etc.

Help us grow our collective knowledge on medications to make the tool useful for everyone!

Take care,

Lizzi from the Carenity team

See the signature

LizziB


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2023-03-13 03:29:52
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