Have you tried Ocrelizumab (Ocrevus)?

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broadwaylady

02/12/2018 at 4:29 AM

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broadwaylady

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Hello,

I am currently taking Beta interferons and participating in physical therapy 3x a week. I also try to get sufficient rest each day and eat organic to help my body recover.

However, I learned of the new drug Ocrevus, which was just recently approved by the FDA. Has anyone tried it? An recommendations.

According to the Mayo Clinic, it says it treats both the relapse-remitting and primary progressive forms of MS. Clinical trials showed it reduced relapse rate in relapsing disease and slowed worsening of disability in both forms of the disease.

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Robin31

08/03/2021 at 5:04 AM

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How does everyone do with the temperatures

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-03 05:04:25

dan.varady

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08/03/2021 at 5:06 PM

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dan.varady

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After the third dose , I consulted with my neurologist and we pushed treatments to 5 1/2 months between treatments. It still keeps me without lesion activity or development.

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Dan Varady

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-03 17:06:02

errolsweet

08/07/2021 at 7:22 PM

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@Mpuop02Ma I have used ocrevus for 1 year now. This method seems to make me better, but its too early to tell.

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Errol R Sweet

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-07 19:22:55

errolsweet

08/07/2021 at 7:24 PM

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@Robin31 I'm not good with the real cold or very hot temperatures

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Errol R Sweet

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2021-08-07 19:24:33

mikeand75

08/07/2022 at 2:54 PM

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Good morning, everyone. I have been on Ocrevus for three and a half years. I have not had problems losing my hair. I am fortunate. Have a great week.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2022-08-07 14:54:11

mikeand75

12/30/2022 at 6:45 PM

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Hello everyone. I have been on Ocrevus for three years. I go two times a year for my infusion. I feel rejuvenated after my infusion. Please research before giving it a try!! Good luck!!! Happy New Year to you and your family!!

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2022-12-30 18:45:55

LizziB

03/13/2023 at 3:29 AM

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@mikeand75 @errolsweet @dan.varady @Robin31 @Mpuop02Ma @MyMS55 @brentfordfc @Mcguire @Lpl616 @Jdduffy0305 @Mastercamp @Margann @Alexis @1DCROMO9 @Wellsville_mom @Mastiffmom @brentfordfc @Jenn0624 @Dianna67 @TCrisafulli @looking4 @FrancesCarner @maryanna @inkygirl @padres44 @jlmarnp @Dottie.jenkins

Hi everyone

How are you doing today?

This thread on Ocrevus got many responses. I would like to invite you all to use the new Carenity feature which allows you the opportunity to rate your treatment. You can leave your opinion on past or current medications. Acting similar to this thread, the tool allows people to look up drugs they are considering taking and see what experiences Carenity members have - does it help reduce symptoms, what are the side effects, how easy is it to administer, etc.

Help us grow our collective knowledge on medications to make the tool useful for everyone!

Take care,

Lizzi from the Carenity team

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LizziB

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2023-03-13 03:29:52

mikeand75

04/21/2024 at 5:15 PM

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Hello. I was taking Ocrevus for 4 years. I am currently taking a new treatment. I am happy to be taking this new new disease modifying agent.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2024-04-21 17:15:01

DCFlower

04/23/2024 at 10:13 PM

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I just recently had a spinal tap to confirm my MS. My Neurologist has me set up yo begin infusions of Ocrevus on May 3. I had a high JC virus index and I'm just learning of details of MS so I am fearful of PML. Has anyone had any similar experiences or give any insight on the med Ocrevus? Thanks.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2024-04-23 22:13:33

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Somya.P

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04/24/2024 at 10:48 AM

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Somya.P

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@DCFlower Hello! How are you? 😊

Thank you for raising this important question. I'm glad to introduce a feature of Carenity where you can add a medication to your profile, rate it, share your thoughts, and view opinions from others. To use this feature, just search for a medication here.

I believe the information you're looking for can be found on this page: Ocrevus

Hope this helps and have a nice day!

Somya from the Carenity team 🌼

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Somya from the Carenity team

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2024-04-24 10:48:16

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mikeand75

07/12/2024 at 5:10 PM

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Last activity on 06/22/2025 at 8:31 PM

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I have been taking Ocrevus for three years. I have not had any flare ups. I am content with this medication.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2024-07-12 17:10:07

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Have you tried Ocrelizumab (Ocrevus)?

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