Have you tried Ocrelizumab (Ocrevus)?

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broadwaylady

02/12/2018 at 4:29 AM

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broadwaylady

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Hello,

I am currently taking Beta interferons and participating in physical therapy 3x a week. I also try to get sufficient rest each day and eat organic to help my body recover.

However, I learned of the new drug Ocrevus, which was just recently approved by the FDA. Has anyone tried it? An recommendations.

According to the Mayo Clinic, it says it treats both the relapse-remitting and primary progressive forms of MS. Clinical trials showed it reduced relapse rate in relapsing disease and slowed worsening of disability in both forms of the disease.

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mikeand75

10/29/2020 at 5:15 PM

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Hello. I am currently taking Ocrevus. I have been on this medication for a year. I have no complaints about the medication. I believe it could help a lot of people.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-29 17:15:57

dan.varady

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10/30/2020 at 5:56 PM

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dan.varady

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I agree 100%, the only drawback is the time the infusion takes to administer

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Dan Varady

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-30 17:56:03

MyMS55

10/31/2020 at 6:21 PM

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I've been on Ocrevus for about two years now and I'm stable with my disease.

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Melissa Vemi

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-10-31 18:21:57

brentfordfc

11/18/2020 at 6:15 PM

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I have been on Ocvrevus since last May and I am very happy with it. I was only diagnosed right before that but my neurologist said Ocvrevus is the best medication out there.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-18 18:15:21

MyMS55

11/19/2020 at 5:40 PM

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I've been on ocrevus for about 2 years myself haven't seen an improvement in my legs but no flares so I'm happy with that. Neurologist has seen improvements in my left arm. Which is my weak-side but I use that arm to get my Walker into the backseat of my car, I think that lifting has been what's helped my left arm.

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Melissa Vemi

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-19 17:40:02

mikeand75

11/21/2020 at 1:56 AM

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I have been on Ocrevus for about a year and a half. I feel the medication is doing good for me. The only problem is with my right leg. When I walk, my right leg is bothersome to bend and walk like I use to.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-21 01:56:24

MyMS55

11/21/2020 at 8:16 PM

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For me and my left leg is still troublesome I still have foot drop. I'm not flaring so I just managed with a troublesome leg. I use a walker now a tall one all the time. I started off with one cane and then two canes, then a walker and now I use a tall walker with arm rests.

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Melissa Vemi

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-21 20:16:14

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11/22/2020 at 5:10 AM

Hello, I've been on Ocrevus for three years I started when I was first diagnosed with Primary progressive MS, my last treatment was in September, for the first time I lost a lot of hair, this had never happened before, and I hope it doesn't ever happen again. But it has slowed the Progression , I was told with the many Lessions I have that I should be in a wheelchair, it's been three years and still walking. I have two beautiful grandson's and I right the right for them. I am getting depressed having to stay home with this Virus, I sell Real estate and my doctor put me in quarantine other than when it's a necessity. How's everyone coping with this.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-22 05:10:52

Jenn0624

11/22/2020 at 6:27 PM

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@mikeand75 I have found a lot of people on Ocrevus have had increase in walking issues. I have torn my ACL AND MCL due to leg weakness and falls. I'm having to get surgery on my right knee soon. It's the same leg with my gait. I was fine walking wise before taking Ocrevus. I'm a member of the Ocrevus page on Facebook and its a common thing I see. A lot of people have reported it to the manufacturer to add it to the side effect list.

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Jennifer Scott

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-22 18:27:04

Pelaton

11/26/2020 at 8:56 PM

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Pelaton

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My neuro suggested I try another treatment because my walking has deteriorated but I tolerate this medication quite well and it has a great record so I will continue with ocrevus for a while longer.

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/anyone-have-experience-with-new-drug-ocrevus-57 2020-11-26 20:56:45

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