Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Living with NAFLD and NASH
  • NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?
 Back
Living with NAFLD and NASH

NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?

  •  2,800 views
  •  41 times supported
  •  98 comments

avatar Lee__R

Lee__R

Community manager
10/26/2018 at 5:08 AM

Good advisor

avatar Lee__R

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,337 comments posted | 17 in the Living with NAFLD and NASH group

2 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend

  • Top chef


 View profileView  Add a friendAdd  Write

One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

Share your experience with others.

Follow

Other groups...

Carenity News
Feedback for Carenity
Fun and games
General Topics
Good to know
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

How do you use Carenity? Share your experience!

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

All comments

Go to the last comment

avatar Celestialraven

Celestialraven

12/29/2018 at 5:36 PM

avatar Celestialraven

Celestialraven

Last activity on 03/19/2025 at 8:24 PM

Joined in 2018


3 comments posted | 3 in the Living with NAFLD and NASH group


Rewards

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

I was diagnosed with NAFLD after a lot of blood tests and an ultrasound. The doctor asked if I had questions. I had lost 75lbs and he told me to try and lose another 20. He told me to Google diet for NAFL, then googled it for me.  Next, he perscribed another blood test to check for if I had fibrosis. It showed I had F1-F2 fibrosis and necroinflamant activity A0 to A1. I see him again in 6 months.


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2018-12-29 17:36:56

avatar giggles

giggles

12/29/2018 at 9:04 PM

avatar giggles

giggles

Last activity on 01/16/2022 at 9:54 PM

Joined in 2018


7 comments posted | 3 in the Living with NAFLD and NASH group


Rewards

  • Contributor

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

what is this thing called nash. what is it. 


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2018-12-29 21:04:18
avatar exit

Unregistered member

01/01/2019 at 12:40 AM

I was diagnosed 2016 and was told nothing. My liver levels are high and i have s knot below my rib that hurts snd tummy will swell.  What do i do


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-01 00:40:50

avatar Chefjohn33

Chefjohn33

01/01/2019 at 6:22 AM

avatar Chefjohn33

Chefjohn33

Last activity on 02/04/2025 at 12:25 AM

Joined in 2019


3 comments posted | 3 in the Living with NAFLD and NASH group


Rewards

  • Explorer

  • Newsfeeder


 View profileView  Add a friendAdd  Write

I was told about it and was told that non alcoholic steatohepititus was the same and non alcoholic fatty liver disease but I was also told that they are not the same can someone please help. I was told to change my diet and I have and I havent lost weight I've gained weight. I am still having lots of abdominal pain and rectal bleeding is that normal as well please help


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-01 06:22:09
avatar exit

Unregistered member

01/05/2019 at 3:14 AM

@Me2018  I also swell all the time i look like i am 7 months pregnant but I'm not pregnant at all. 


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-05 03:14:10
avatar exit

Unregistered member

01/13/2019 at 1:35 AM

I was told died and execise and no other information was given to me.


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-13 01:35:49
avatar exit

Unregistered member

01/13/2019 at 11:44 PM

I was really sick..couldn't eat lost 40lbs in less than 2 months..I thought I was dying. Blood work and ultrasound confirmed that I had non alcoholic fatty liver disease was told to diet and exercise but nothing more. I still live in pain and swell up as if I'm 9 months pregnant...I wish I had more answers more direction more relief

 


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-13 23:44:22

avatar 1950music

1950music

01/23/2019 at 8:10 PM

avatar 1950music

1950music

Last activity on 05/07/2025 at 1:40 PM

Joined in 2018


1 comment posted | 1 in the Living with NAFLD and NASH group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

Diagnosed in December 2016 by ER doctor.  Saw my personal physician. Recommended I lose weight. Never could. Lose 5 gain 10 back. Dr suggested I download some apps.  Downloaded MyFitnessPal and Health2sync. Started waking more. Lost 100 pounds in 2017.  Gained 10 lbs in 2018  mostly from stress of caring for my husband with end stage COPD.  I’ve googled lots of healthy foods for NAFLD.  I concentrate on eating healthy.   I also lowered my A1C from 7.9 to 5.5  I feel healthy even with 4 surgeries in 2017 and one surgery in 2018.  Bone spurs in shoulder and thumb and CMC joint on right side and bone spur and 95% tear in rotator cuff on left shoulder. And one toe straighten and excess cartilage removed after callus removal.  Seeing another dr for shots in hands to treat dupuytrens.   Take life one day at a time and do the best y can

 

See the signature

C Hale


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-23 20:10:40
avatar exit

Unregistered member

01/24/2019 at 8:44 PM

I was diagnosed in 2017 by my primary doctor, (after 4yrs of my pain management doctor trying to find the source of all  the inflammation.) I wasn't given any plan or advice about living with nafld, what I learned, I've  learned on my own...however everything ive tried on my own fails. Now I get horrible nausea and hurt  in the liver area almost daily, I've gained over 50lbs and continue to gain weight. Im still going from doctor to doctor trying to get something done!


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-24 20:44:33

avatar sexywench79

sexywench79

01/25/2019 at 5:01 AM

avatar sexywench79

sexywench79

Last activity on 02/26/2019 at 2:36 AM

Joined in 2019


1 comment posted | 1 in the Living with NAFLD and NASH group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

I have an enlarged fatty liver. Been years. I am having more testing done. I cry every night about 3-4 hours after dinner. I get sharp shooting pains near or in liver. Still waiting for all tests to be done and results. I do know I have IBS, GERD, Barrett's Esophagus, gas, bloating, some bouts of diarrhea. I am tired of the pain. I get scared to eat.


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-25 05:01:52
  • 2
  • 3
  • 4
  • 5
  • 6

Give your opinion

Survey

How do you use Carenity? Share your experience!

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Articles to discover...

Can you train your brain to feel happier, scientifically?

06/14/2025 | Advice

Can you train your brain to feel happier, scientifically?

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

06/09/2025 | News

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

Sports and medications: 10 drugs that could harm your athletic performance

05/30/2025 | News

Sports and medications: 10 drugs that could harm your athletic performance

The fear of flare-ups: How to stop waiting for the worst and take back control

05/23/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.